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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Retinitis pigmentosa

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Overview

Type of Disease: Not available

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 11 results.
Disability & Sexuality Webinar Series
Added On: Jun 11, 2019
Category: General
Language(s): English
Sexual health is an important but overwhelming and confusing part of growing up. This 4-part series of videos has accompanying PDFs, suggested accompanying books, and synopses of the 4 full webinars.
USH Talks - Video Presentations on Usher syndrome
Publish Date: Nov 29, 2016
Category: General
This video podcast delivers the latest in research developments and community stories directly to you.
Usher Syndrome Blog
Added On: Oct 31, 2014
Category: Blogs
The USH Blog contains posts by individual authors on a variety of topics that affect the Usher syndrome community.
USH Trust Registry
Added On: Oct 31, 2014
Category: General
Language(s): English, Spanish, Dutch, German, Hebrew
The USH Trust is the largest international Usher syndrome registry in the world. It is a confidential, simple and secure place for everyone with Usher syndrome to sign up, be connected, and be informed of clinical trials and relevant studies.
APS Friends & Support Forum
Added On: Nov 13, 2012
Category: Blogs
Language(s): English
Are you looking for Support for Antiphospholipid Antibody Syndrome, APS, APLS, APLA, Hughes Syndrome, or Sticky Blood? Well you've come to the right place! This is an closed forum for people who have Antiphospholipid Syndrome.