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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Myotonic dystrophy type 2

Proximal Myotonic MyopathyDM2PROMM
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Overview

Type of Disease: Rare Condition or Disease Genetic, autosomal dominant Physical disability (no intellectual disability)

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 7 results.
Toolkits and Guidelines
Added By: Myotonic
Added On: Sep 10, 2019
Category: General
Myotonic offers resources and information for clinicians treating people living with DM. Be sure to download and share these with your doctors to help educate them about myotonic dystrophy care recommendations and improve the your family receives.
Testing and Diagnosis
Added By: Myotonic
Added On: Sep 10, 2019
Category: General
Testing and Diagnosis resources
Support Groups
Added By: Myotonic
Added On: Sep 10, 2019
Category: General
MDF has 22 active support groups around the country, and one in Canada. For those who do not live near one of our existing support groups, our online support community is available at any time. We also offer Facebook Live Chats every month.
Find a Doctor
Added By: Myotonic
Added On: Sep 10, 2019
Category: General
Myotonic offers the Find a Doctor Program, a constantly-expanding, community-generated list that features clinicians based in countries across the globe.
Financial Resources
Added By: Myotonic
Added On: Sep 10, 2019
Category: General
This page attempts to provide U.S.-based families with financial resources that are available on a federal/national level, and state-specific level. The types of resources included are financial, autism-related, caregivers/respite, employment & more.