# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Adrenoleukodystrophy

ALD
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Overview

Type of Disease: Rare Condition or Disease Genetic, X-linked Congenital onset Pediatric onset

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-4 of 4 results.
Adrenoleukodystrophy Information
Added By: Fight ALD
Added On: Jun 23, 2020
Category: General
The information platform to all aspects of adrenoleukodystrophy and the worldwide registry for ABCD1 mutations.
Standards of Care
Added By: Fight ALD
Added On: Jun 23, 2020
Category: General
This is a guide that has been put together for families who's boys have been diagnosed with ALD through newborn screening. It was developed by doctors and ALD families to ensure the best outcome for affected boys.
ALD Connect
Added By: Fight ALD
Added On: Jun 23, 2020
Category: General
Another resource for information to help affected families.
ALD-AMN Route Map
Added By: ALD Life
Added On: Apr 4, 2013
Category: General
A dedicated website for providing patients and families affected by Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) a journey of their health and social care needs.