MitoAction Disease Support Organization Last Updated: May 19, 2020 12:58:25 pm Brochure Established: 2005 Area Served: United States MitoAction is a nonprofit organization dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives. Website: http://www.mitoaction.org/ Diseases Supported Carnitine Palmitoyl Transferase 1 Deficiency • Carnitine Palmitoyl Transferase 2 Deficiency • Mitochondrial complex I deficiency • Mitochondrial complex II deficiency • Mitochondrial complex III deficiency • Mitochondrial complex IV deficiency • Mitochondrial complex V deficiency • Mitochondrial disease with severe hypotonia, lactic acidaemia and hyperammonemia • Mitochondrial diseases, clinically undefinite • Mitochondrial disorders • Mitochondrial encephalomyopathy lactic acidosis and stroke-like episodes • Mitochondrial myopathy with lactic acidosis • Trifunctional protein deficiency • Infantile carnitine palmitoyltransferase II deficiency • Myopathic carnitine palmitoyltransferase II deficiency • Carnitine palmitoyltransferase II deficiency, lethal neonatal Show All 16Show Less PO Box 310 Novi, Michigan 48376 United States 888-648-6228888-648-6228 firstname.lastname@example.org 1 address 1 contact Show All This organization has not provided any social media links. Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit National Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?