Smith-Kingsmore Syndrome Disease Support Organization Last Updated: Oct 23, 2019 11:09:39 am Established: 2018 Area Served: International Our mission is to be the most up-to-date source of information on Smith-Kingsmore syndrome, and be a support for families, doctors and medical researchers. Website: https://smithkingsmore.org Diseases Supported Macrocephaly • Intellectual disability • Seizures • Developmental delay • Smith-Kingsmore syndrome • Smith-Kingsmore syndrome Show All 6Show Less email@example.com This organization has not provided any social media links. Staff Speaks: English, German Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization Not 501(c)3 Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget N/A Funding for Research Funding Sources: Not Applicable This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?