SADS (Sudden Arrhythmia Death Syndromes) Foundation Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Brochure Established: 1992 Area Served: International Our mission is to save the lives of young people who are genetically predisposed to sudden death due to cardiac arrhythmia and to provide education and support to families and the medical community. Website: http://www.StopSADS.org Diseases Supported Brugada Syndrome • Jervell Lange-Nielsen syndrome • Long QT Syndrome • Long QT syndrome 8 • Sudden arrhythmic death syndrome • Arrhythmogenic Right Ventricular Cardiomyopathy • Wolff-Parkinson-White syndrome • Short qt syndrome 1 • Romano-Ward syndrome Show All 9Show Less 508 E South Temple Ste 202 Salt Lake City, Utah 84102 United States 1-800-786-7723(801) 531-0937 firstname.lastname@example.org 1 address 4 contacts Show All This organization has not provided any social media links. Staff Speaks: English, Spanish Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $700,000 Annual Budget N/A Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: Yes If yes, % of funding from such companies? 27 Our Membership N/A Membership Size N/A # of Chapters 40,000 Total Number on Mailing List 6,000 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. SADS Foundation Website Added On: Apr 29, 2014 Category: General Disease(s): Andersen Tawil Syndrome • Brugada Syndrome • Jervell Lange-Nielsen syndrome • Long QT Syndrome • Long QT syndrome 8 • Wolff-Parkinson-White syndrome • Short qt syndrome 1 Information on living with SADS, diagnosis, treatment, prevention, and advocacy/education. Drugs to Avoid List Added On: Apr 29, 2014 Category: General Disease(s): Long QT Syndrome • Long QT syndrome 8 Listing of drugs to avoid if you have Long QT Syndrome Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?