PXE International, Inc. Disease Support Organization Last Updated: Nov 6, 2019 04:05:10 pm Brochure Established: 1995 Area Served: International PXE International initiates, conducts and funds research on pseudoxanthoma elasticum (PXE), educates clinicians and supports affected individuals. Website: http://www.pxe.org Diseases Supported Pseudoxanthoma elasticum 4301 Connecticut Av, NW Suite 404 Washington, District Of Columbia 20008 United States NA202-362-9599 email@example.com 1 address 3 contacts Show All This organization has not provided any social media links. Staff Speaks: Chinese, Dutch, English, Finnish, French, German, Italian, Russian, Spanish, Hungarian Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $200,000 Annual Budget $150,000 Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership 10,000 Membership Size 52 # of Chapters 12,200 Total Number on Mailing List 4,200 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. General Bulletin Publication Date: Nov 6, 2019 Category: General Language(s): English Disease(s): Pseudoxanthoma elasticum This describes the basics about PXE. General Bulletin Added On: Nov 18, 2012 Category: General Disease(s): Pseudoxanthoma elasticum General information for affected individuals and their providers Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?