Muscular Dystrophy Association Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 1950 Area Served: National MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. Website: http://www.mdausa.org Diseases Supported Amyotrophic Lateral Sclerosis • Carnitine Deficiency • Carnitine Palmitoyl Transferase 1 Deficiency • Carnitine Palmitoyl Transferase 2 Deficiency • Charcot-Marie-Tooth Disease • Charcot-Marie-Tooth Disease Type 1B • Congenital Myotonic Dystrophy • Dermatomyositis • Duchenne muscular dystrophy • Friedreich Ataxia (FA) • Pompe disease • Glycogen Storage Disease Type 5 • Lambert Eaton myasthenic syndrome • Lipidosis with triglyceride storage disease • Mitochondrial disorders • Mitochondrial encephalomyopathy lactic acidosis and stroke-like episodes • Muscular dystrophy • Myasthenia gravis • Congenital myopathy • Myositis • Myositis, inclusion body • Myotonic dystrophy • Oculopharyngeal muscular dystrophy • Phosphofructokinase Deficiency • Polymyositis • Spinal muscular atrophy • Spinal muscular atrophy type 1 • Spinal muscular atrophy type 2 • Carnitine uptake defect Show All 29Show Less This organization has not provided an address. This organization has not provided any social media links. Staff Speaks: English, Spanish Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit National Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership 150,000 Membership Size 159 # of Chapters 12,000,000 Total Number on Mailing List 100,000 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?