MEPAN Foundation Disease Support Organization Last Updated: Jul 29, 2020 08:59:51 am Established: 2018 Area Served: International Awareness and support for patients with MEPAN Syndrome and related disorders. Website: https://www.mepan.org Diseases Supported Mitochondrial disorders • MEPAN Syndrome Types of Diseases Supported Rare Condition or Disease • Genetic, autosomal recessive • Genetic, mitochondrial • Pediatric onset • Mitochondrial disorder • Neuordegenerative disorders Show All 6Show Less firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget N/A Funding for Research Funding Sources: PublicDonations This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. MECR GeneReview Publication Date: May 20, 2019 Category: General Language(s): English Disease(s): Mitochondrial disorders 2019 GeneReview that describes MEPAN symptoms, methods of diagnosis, genetic inheritance pattern and supportive treatments. MECR-MEPAN Syndrome Research Paper Added On: Aug 26, 2019 Category: General Language(s): English Disease(s): Mitochondrial disorders 2016 paper that first describes MEPAN Syndrome. Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?