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# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

MEPAN Foundation

Disease Support Organization
Last Updated: Aug 26, 2019 05:11:05 pm
Established: 2018
Area Served: International

Awareness and support for patients with MEPAN Syndrome and related disorders.

Diseases Supported
Mitochondrial disorders • MEPAN Syndrome
Types of Diseases Supported
Rare Condition or Disease • Genetic, autosomal recessive • Genetic, mitochondrial • Pediatric onset • Mitochondrial disorder • Neuordegenerative disorders
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1 address 1 contact
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Staff Speaks: English
Telephone Translation: No (Translation services available for other languages)

Our Organization

Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff

Our Financials

N/A Funding for Services N/A Annual Budget N/A Funding for Research
Funding Sources: PublicDonations
This organization receives funding from a company that produces a test or treatment for the condition it serves: No
If yes, % of funding from such companies?

Our Membership

What We Do

Support & Peer Matching
Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services
Therapy & Counseling
Professional Counseling Crisis Intervention Grief Counseling
Medical Referrals
Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling
Legal Advice
Workplace Issues Malpractice Help with Adoption or Placement
Financial Assistance
Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications
Research
Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage
Education & Training
Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training
Other
Pen pal Program Summer Camp

Resources

Disease resources include educational and informational materials that can be tagged to appear on specific disease pages.

MECR GeneReview
Publication Date: May 20, 2019
Category: General
Language(s): English
Disease(s): Mitochondrial disorders
2019 GeneReview that describes MEPAN symptoms, methods of diagnosis, genetic inheritance pattern and supportive treatments.
MECR-MEPAN Syndrome Research Paper
Added On: Aug 26, 2019
Category: General
Language(s): English
Disease(s): Mitochondrial disorders
2016 paper that first describes MEPAN Syndrome.
Showing 2 of 2 resources.