Klippel-Feil Syndrome Freedom Disease Support Organization Last Updated: Feb 6, 2019 02:38:23 pm Brochure Established: 2014 Area Served: International Klippel-Feil Syndrome Freedom empowers and unites patients and their families through peer support, education, research, and advocacy, for a lifetime of improved health care. Website: https://www.facebook.com/KlippelFeilSyndromeFreedom Diseases Supported Klippel-Feil syndrome • . • KFS.Freedom@gmail.com 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization Not 501(c)3 Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership 3,000 Membership Size 4 # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. Klippel-Feil SYndrome Freedom Facebook page Added On: Nov 21, 2014 Category: General Disease(s): Klippel-Feil syndrome • Klippel-Feil syndrome 1, autosomal dominant Valuable information specific to Klippel-Feil syndrome posted daily as a full resource to patients and families. Visit us! Showing 1 of 1 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?