KCNQ2 Cure Alliance Disease Support Organization Last Updated: Oct 13, 2020 03:54:06 pm Brochure Established: 2014 Area Served: International The mission of KCNQ2 Cure Alliance is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 developmental and epileptic encephalopathy. Website: http://www.kcnq2cure.org/ Diseases Supported Delayed Myelination • Developmental disability • Epilepsy • Pervasive Developmental Disorders • West syndrome • Autism Spectrum Disorders • Epileptic encephalopathy, early infantile, 7 Show All 7Show Less 3700 Quebec St Unit 100-118 Denver, Colorado 80207 United States 720-772-1433 email@example.com 1 address 2 contacts Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $100,000 Annual Budget $200,000 Funding for Research Funding Sources: PrivateDonations This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership N/A Membership Size N/A # of Chapters 1,000 Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. KCNQ2 Cure Alliance Website Added On: Dec 12, 2015 Category: General Disease(s): Developmental disability • Epilepsy • Autism Spectrum Disorders • Epileptic encephalopathy, early infantile, 7 KCA's website provides information for caregivers and professional on the diagnosis, management, and treatment of KCNQ2 encephalopathy. Showing 1 of 1 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?