The CRF’s mission is to fund research to find better and more effective treatments for the disease and to find a cure for cystinosis. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $54.0 million for cystinosis research.
Telephone Translation: No(Translation services available for other languages)
Board of Directors Paid Staff
$9,808,000Funding for Services$3,300,000Annual Budget $8,728,000Funding for Research
This organization receives funding from a company that produces a test or treatment for the condition it serves:
If yes, % of funding from such companies?
N/AMembership Size N/A# of ChaptersN/ATotal Number on Mailing ListN/APeople with Conditions in Your Mailing List
What We Do
Support & Peer Matching
Referrals to Matching Individuals/Families
Referrals to Local Chapter or Group
Therapy & Counseling
Clinical or Treatment Centers
Help with Adoption or Placement
Referrals to Research Studies
Registry of affected individuals
Blood and Tissue Sample Storage
Education & Training
Pen pal Program
Conference: CRF Day of Hope Family Conference
When:Apr 16, 2020 03:00 PM (UTC -8:00 US PST). Ends on Apr 18, 2020.
Where:18802 Bardeen Avenue,
As a resource for the cystinosis community of families and patients, CRF sponsors the Day of Hope, an annual family conference, to educate, support and network cystinosis families from around the world. CRF funded researchers present their research