Cystic Fibrosis Research, Inc. Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 1975 Area Served: United States Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support and to spread awareness of cystic fibrosis, a life-threatening genetic disease. Website: http://www.cfri.org Diseases Supported Cystic Fibrosis 2672 Bayshore Parkway, Suite 520 Mountain View, California 94043 United States (855) 237-4669(650) 404-9977 CFRI@CFRI.org This organization has not provided any social media links. Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit National Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $900,000 Annual Budget $290,000 Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: Yes If yes, % of funding from such companies? 25 Our Membership N/A Membership Size 1 # of Chapters 15,000 Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. CFRI newsletter Added On: Oct 19, 2012 Category: General Disease(s): Cystic Fibrosis Newsletter issued 3 times a year, addressing CF education, research, inspiration, and new information on medications and therapies. CF in the Classroom (English and Spanish) Added On: Oct 19, 2012 Category: General Disease(s): Cystic Fibrosis A guide/manuel for parents, teachers, school administrators, and the healthcare team. Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?