Cutis Laxa Internationale Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Brochure Established: 2001 Area Served: International Our mission is to break the sufferers' loneliness and isolation, to support research and to disseminate information on Cutis Laxa by all means. Website: http://www.cutislaxa.org Diseases Supported Cutis Laxa • Cutis Laxa with Joint Laxity and Retarded Development • Cutis Laxa, Dominant Type • Geroderma Osteodysplasticum • • Show All 6Show Less This organization has not provided an address. This organization has not provided any social media links. Staff Speaks: English, French Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization Not 501(c)3 Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $25,000 Annual Budget N/A Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership 100 Membership Size 1 # of Chapters 600 Total Number on Mailing List 207 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?