Cohen Syndrome Ass Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 2008 Area Served: International Mission: To raise awareness for earlier diagnosis of Cohen Syndrome. We A.R.E. Cohen Syndrome We Advocate, Research & Educate families And professionals about Cohen Syndrome Website: http://cohen-syndrome.org/ Diseases Supported Cohen Syndrome email@example.com 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization 501(c)3 Status Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership 420 Membership Size N/A # of Chapters 148 Total Number on Mailing List 148 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. Gene Review on Cohen Syndrome Added On: Feb 1, 2014 Category: General Study and review of Cohen Syndrome Showing 1 of 1 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?