# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Association for the Bladder Exstrophy Community

Disease Support Organization
Last Updated: Jan 3, 2019 03:54:07 pm

Our Organization

Unincoporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff

Our Financials

N/A Funding for Services $50,000 Annual Budget N/A Funding for Research
Funding Sources: Donations
This organization receives funding from a company that produces a test or treatment for the condition it serves: No
If yes, % of funding from such companies?

Our Membership

1,500 Membership Size 1 # of Chapters 1,700 Total Number on Mailing List 1,500 People with Conditions in Your Mailing List

What We Do

Support & Peer Matching
Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services
Therapy & Counseling
Professional Counseling Crisis Intervention Grief Counseling
Medical Referrals
Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling
Legal Advice
Workplace Issues Malpractice Help with Adoption or Placement
Financial Assistance
Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications
Research
Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage
Education & Training
Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training
Other
Pen pal Program Summer Camp