Aplastic Anemia & MDS International Foundation
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.
Diseases Supported
Aplastic Anemia •
Chronic Lymphocytic Leukemia •
Chronic Myelomonocytic Leukemia •
Chronic Myeloproliferative Disorders •
Congenital Aplastic Anemia •
Late acute graft versus host disease •
Myelodysplastic syndromes •
Myelofibrosis •
Paroxysmal nocturnal hemoglobinuria •
Pure red cell aplasia •
Acquired pure red cell aplasia •
Chronic Graft versus Host Disease
What We Do
Support & Peer Matching
Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation ServicesTherapy & Counseling
Professional Counseling Crisis Intervention Grief CounselingMedical Referrals
Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic CounselingLegal Advice
Workplace Issues Malpractice Help with Adoption or PlacementFinancial Assistance
Medical Care Transportation Assistive devices Insurance Scholarships Home ModificationsResearch
Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample StorageEducation & Training
Telephone Helpline E-mail List Training Speakers Bureau Advocacy TrainingOther
Pen pal Program Summer CampResources
Disease resources include educational and informational materials that can be tagged to appear on specific disease pages.
AAMDSIF Online Academy (webinars)
200+ FREE webinars for patients, families and caregivers about rare blood cancers and bone marrow failure diseases.
AAMDSIF Educational Resources
Publications, links to patient conferences and webinars
AAMDSIF Disease Information
Descriptions of various rare blood cancers and bone marrow failure diseases.
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