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Aplastic Anemia & MDS International Foundation

Disease Support Organization
Last Updated: Jun 11, 2019 09:36:00 am
Established: 1983
Area Served: International

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

4330 East West Highway
Suite 230
Bethesda, Maryland 20814
United States
(800) 747-28203012797202
1 address 2 contacts
Show All
Staff Speaks: English
Telephone Translation: No (Translation services available for other languages)

Our Organization

Incorporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff

Our Financials

$2,000,000 Funding for Services $3,000,000 Annual Budget $1,000,000 Funding for Research
Funding Sources: PrivateDonations
This organization receives funding from a company that produces a test or treatment for the condition it serves: Yes
If yes, % of funding from such companies? 25

Our Membership

What We Do

Support & Peer Matching
Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services
Therapy & Counseling
Professional Counseling Crisis Intervention Grief Counseling
Medical Referrals
Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling
Legal Advice
Workplace Issues Malpractice Help with Adoption or Placement
Financial Assistance
Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications
Research
Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage
Education & Training
Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training
Other
Pen pal Program Summer Camp

Resources

Disease resources include educational and informational materials that can be tagged to appear on specific disease pages.

AAMDSIF Online Academy (webinars)
Added On: Dec 18, 2018
Category: General
Disease(s): Aplastic Anemia • Congenital Aplastic Anemia • Myelodysplastic syndromes • Paroxysmal nocturnal hemoglobinuria
200+ FREE webinars for patients, families and caregivers about rare blood cancers and bone marrow failure diseases.
AAMDSIF Educational Resources
Added On: Dec 18, 2018
Category: General
Disease(s): Aplastic Anemia • Congenital Aplastic Anemia • Myelodysplastic syndromes • Paroxysmal nocturnal hemoglobinuria
Publications, links to patient conferences and webinars
AAMDSIF Disease Information
Added On: Dec 18, 2018
Category: General
Disease(s): Aplastic Anemia • Congenital Aplastic Anemia • Myelodysplastic syndromes • Paroxysmal nocturnal hemoglobinuria
Descriptions of various rare blood cancers and bone marrow failure diseases.
Showing 3 of 3 resources.