Alveolar Capillary Dysplasia Association Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Brochure Established: 1996 Area Served: N/A The purpose of the ACDA is to gather and share information about ACD and raise funds for ACD research. Website: http://www.acd-association.com/ Diseases Supported Alveolar Capillary Dysplasia 5902 Marcie Court Garland, Texas 75044 United States (972)-414-7722 firstname.lastname@example.org 1 address 1 contact Show All Connect: Telephone Translation: No (Translation services available for other languages) Our Organization Business Entity Type Area Served Not 501(c)3 Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget $90,000 Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. ACDA Website Added On: Oct 22, 2012 Category: General Disease(s): Alveolar Capillary Dysplasia Member website with information on research, fundraising, medical journals, FAQs, guestbook and donations Website for ACDA Added On: Oct 22, 2012 Category: General Disease(s): Alveolar Capillary Dysplasia Website for the ACD Association; has information on research, medical journals, family stories, FAQs, newsletters and fundraisers. Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?