Aaron's Ohtahara Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Established: 2010 Area Served: International We offer hope to families with any child who has been diagnosed with Ohtahara Syndrome. We strive to accomplish this through support, research, education, and awareness. Website: http://www.ohtahara.org Diseases Supported Ohtahara syndrome PO Box 220 Boystown, Nebraska 68010 United States Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization 501(c)3 Status Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?