AIS-DSD Support Group Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Brochure Established: 1995 Area Served: International The AIS-DSD Support Group is a compassionate community of individuals, families and allies collaborating to promote better lives and informed decision-making through advancement of knowledge so no one will face a diagnosis alone. Website: http://www.aisdsd.org Diseases Supported 17-Beta hydroxysteroid dehydrogenase 3 deficiency • Ambiguous genitalia • Androgen Insensitivity Syndrome • Androgen Insensitivity Syndrome, Complete • Androgen Insensitivity Syndrome, Mild • Androgen Insensitivity Syndrome, Partial • Anorchia • Hypospadias • Intersex conditions • Klinefelter syndrome • Leydig cells hypoplasia • Mayer-Rokitansky-Kuster-Hauser Syndrome • Mullerian agenesis • Pseudovaginal perineoscrotal hypospadias • Swyer syndrome • Turner syndrome • 46,XY gonadal dysgenesis, partial, with minifascicular neuropathy • Adrenal insufficiency, congenital, with 46,XY sex reversal, partial or complete • 46, XY disorders of sexual development • complete gonadal dysgenesis • vanishing testes syndrome • micropenis • mosaic turner syndrome • ovotesticular disorder • sex reversal • • • • Show All 29Show Less firstname.lastname@example.org This organization has not provided any social media links. Staff Speaks: Chinese, Dutch, English, French, German, Italian, Japanese, Portuguese, Spanish Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit International Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget N/A Funding for Research Funding Sources: Donations This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?