# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!



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Type of Disease: Not available

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.

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Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-4 of 4 results.
Guide for New Parents
Publish Date: Jun 13, 2019
Category: General
Language(s): English
This guide was created by a group of fellow parents. When many of our children were diagnosed with CDKL5 Deficiency Disorder approximately a decade ago, almost no comprehensive information existed. We hope this guide will serve as a starting point.
CDKL5 Resource Library
Publish Date: Jun 13, 2019
Category: General
Language(s): English
Resource guides are available covering topics of Newly Diagnosed, Finding Your New Normal, Medical Advocacy, Educational Advocacy, Transition to Adult Care, and Clinical Care. Video from past conferences covering a broad range of therapeutic topics.
KCNQ2 Cure Alliance Website
Added On: Dec 12, 2015
Category: General
KCA's website provides information for caregivers and professional on the diagnosis, management, and treatment of KCNQ2 encephalopathy.
Family Resources
Added By: Idic15 Canada
Added On: Oct 1, 2014
Category: General
please Contact us for an info booklet on the syndrome Chromosome 15q11.2-13.1 Duplication via email tlmckirdy@gmail.com