# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!



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Type of Disease: Chromosomal Genetic, autosomal recessive Genetic, autosomal dominant Congenital onset

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
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Research Grants
Added On: Jul 7, 2015
Category: General
NFS provides research grants as funds are available. Grants are submitted by July annually and if approved, are awarded each September. Grant are only available for qualified research initiatives and are not available for administrative support.
Family Support
Added On: Jul 7, 2015
Category: General
NFS serves as a resource to families afflicted by Syndactyly or any related congenial hand or feet birth defects.
Facility and Physician Support
Added On: Jul 7, 2015
Category: General
NFS provides informational brochures to Children's' Hospitals, Physicians, and Therapy Centers to help afflicted families connect to NFS Family Support Services.