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Support Services
Displaying 11-20 of 21 results.
Area Served: International
Established: 1968
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 11 Jun 2019
The Hereditary Disease Foundation is committed to funding innovative research to cure Huntington’s disease and impact other brain disorders. The Foundation focuses on curing Huntington’s disease, not only because of its devastating consequences to individuals and families with the disease, but ...
Area Served: United States
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 13 Jun 2019
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of ...
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
Parent to Parent of New York State's mission is to connect and support parents of children with special needs.
Area Served: United States
Established: 1996
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 5 Jul 2019
Patient Advocate Foundation provides real-time help for patients facing critical illness as they encounter barriers in their healthcare. PAF delivers tangible assistance through personalized case management services, financial support towards medication co-payments or non-medical living expenses and the connection ...
Area Served: International
Established: 2015
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 25 Jun 2019
Rare Diseases International's mission is to be a strong common voice on behalf of people living with a rare disease around the world.
Area Served: State
Established: 2011
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
General Support Organization
Last Updated: 3 Jan 2019
The mission of the Rhode Island Rare Disease Foundation is to benefit Rhode Islanders living with a rare disease and their families by: providing information and support, raising awareness, advocating, and educating both the medical community and the general public.
Established: 1988
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 17 Jul 2019
SPAN's vision is that all families receive resources and support to ensure their children become fully participating, contributing members of our communities and society. We support families and inform/involve those interested in the healthy development and education of children and ...
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 3 Jan 2019
Helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
Area Served: National
Established: 1972
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, ...
Established: 1969
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
Our mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.