# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Neurofibromatosis type 1

Neurofibromatosis 1 (NF1)Von Recklinghausen Disease
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Support Type
Support Services
Displaying 1-10 of 25 results.
Area Served: United States
Established: 1978
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 24 Jun 2019
Drive research, expand knowledge, and advance care for the NF community.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 18 Jun 2019
The Littlest Tumor Foundation is committed to strengthening NF families, building compassion, advancing NF research, and empowering the next generation of NF leaders. We develop and deliver impactful programming including the NF Family Wellness Retreat, the NF Young Adult Leadership ...
Established: 1978
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 25 Jun 2019
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Area Served: United States
Established: 1988
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
Neurofibromatosis, Inc., now the Neurofibromatosis(NF) Network, is a national, tax-exempt, charitable organization whose mission is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and ...
Area Served: United States
Established:
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
Our mission is to find treatments and the cure for neurofibromatosis by promoting scientific research, creating awareness, and providing hope and support to those who are affected by NF.
Area Served: International
Established: 2010
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 24 Oct 2019
Simons Searchlight is a partnership of leading scientists, doctors and families on a mission. We are a non-profit, online community that studies over 100 genes that are associated with autism and other neurodevelopmental disorders. You or your family member needs ...
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.
Area Served: United Kingdom
Established: 1979
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 5 Sep 2019
Contact improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for ...