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Myotonic dystrophy

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Support Services
Displaying 1-10 of 23 results.
Area Served: United States
Established: 2006
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
The Myotonic Dystrophy Foundation (MDF) exists to enhance the quality of life of people living with myotonic dystrophy (DM), and to maximize research efforts focused on finding treatments and a cure for this disease, through community support, education, advocacy and ...
Area Served: United States
Established: 2004
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 18 Jul 2019
We help people with Parkinson’s live well today. We provide essential information, practical tools and inspiration to people living with Parkinson’s and their care partners; we host educational and fundraising events in locations all over the world; and we fund early-phase, ...
Area Served: International
Established: 2018
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 19 Jul 2019
It is the mission of the FOXG1 Research Foundation to accelerate research to find a cure for FOXG1 syndrome. We will fund the world's leading scientists that are integral along our Path to a Cure for all children with FOXG1 syndrome. ...
Area Served: National
Established: 1950
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.
Established: 1979
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 3 Jan 2019
Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a ...
Area Served: Netherlands
Established: 2000
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of ...
Established: 1969
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To improve services for all children with disabilities.