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Krabbe leukodystrophy
Galactosylceramide beta-galactosidase deficiencyKrabbe Disease
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It is the mission of the FOXG1 Research Foundation to accelerate research to find a cure for FOXG1 syndrome.
We will fund the world's leading scientists that are integral along our Path to a Cure for all children with FOXG1 syndrome. ...
The Foundation's mission is to increase public awareness of Krabbe Disease and other leukodystrophies, as well as to increase the likelihood of early detection and treatment. The Foundation's goal is to fund research efforts to identify new treatments, therapies and ...
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
Pediatric Brain Foundation's Mission is Three-fold:
1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder
2. Provide families and health care ...
Raising awareness of the Leukodystrophies, and raising funds for Leukodystrophies research.
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.
Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a ...
Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of ...