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Epilepsy

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Support Type
Support Services
Displaying 1-10 of 36 results.
Area Served: International
Established: 1998
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
Citizens United for Research in Epilepsy (CURE) is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.
Area Served: United States
Established: 1968
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jun 2020
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
The Epilepsy Support Network of Orange County is committed to building a community of support to improve the lives of those affected by epilepsy through education, programs and advocacy.
Area Served: International
Established: 2018
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 19 Jul 2019
It is the mission of the FOXG1 Research Foundation to accelerate research to find a cure for FOXG1 syndrome. We will fund the world's leading scientists that are integral along our Path to a Cure for all children with FOXG1 syndrome. ...
Area Served: International
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 22 Jul 2020
Hope for Hypothalamic Hamartomas (Hope for HH) provides information, support and community to HH patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and cure.
Area Served: International
Established: 2013
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 10 Jun 2019
Idic15 Canada is a national non-profit with a Global reach, responsible for expediting quality, coordination, accessibility and research of medical care and social support innovations for families living with the rare disorder Chromosome 15q11.2-13.1 Duplication Syndrome. We will uphold our ...
Area Served: International
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Jun 2019
To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts and increasing awareness while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services.
Area Served: International
Established: 2014
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Oct 2020
The mission of KCNQ2 Cure Alliance is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 developmental and epileptic encephalopathy.
Area Served: Missouri
Established: 2005
501(c)3 Nonprofit: No
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers ...
Established: 1996
501(c)3 Nonprofit: No
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients ...