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Distal Myopathy

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Clinical Trials

This information is provided by ClinicalTrials.gov

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Displaying 1-4 of 4 results.
International GNE Myopathy Patient Registry
Status: Recruiting
Last Changed: Jul 05, 2019
First Received: Jul 05, 2019
Disease(s): GNE Myopathy, Hereditary Inclusion Body Myopathy
Intervention(s): Patient Registry
Locations: John Walton Muscular Dystrophy Research Centre, Newcastle Upon Tyne, United Kingdom
Multi-Center Study of ManNAc for GNE Myopathy
Status: Not yet recruiting
Last Changed: Jan 18, 2020
First Received: Jan 18, 2020
Disease(s): GNE Myopathy
Intervention(s): ManNAc, Placebo
Locations: UCLA, Los Angeles, California, United States
University of Iowa, Iowa City, Iowa, United States
University of Kansas, Medical Center, Kansas City, Kansas, United States
NIH Clinical Center, Bethesda, Maryland, United States
Brigham and Women's Hospital, Boston, Massachusetts, United States
... and 6 other locations.
A Natural History Study of Patients With GNE Myopathy
Status: Recruiting
Last Changed: Dec 23, 2019
First Received: Aug 16, 2011
Disease(s): Hereditary Inclusion Body Myopathy, GNE Myopathy
Locations: National Institutes of Health Clinical Center, 9000 Rockville Pike, Bethesda, Maryland, United States
Genetic Study of Familial and Sporadic ALS/Motor Neuron Disease, Miyoshi Myopathy and Other Neuromuscular Disorders
Status: Recruiting
Last Changed: Nov 15, 2019
First Received: Oct 25, 2011
Disease(s): Amyotrophic Lateral Sclerosis, Frontotemporal Dementia, PLS, Motor Neuron Disease, Lou Gehrigs Disease, Familial Disease, Amyotrophic Lateral Sclerosis, Sporadic, Muscular Dystrophy, Miyoshi Myopathy, Amyotrophic Lateral Sclerosis With Dementia
Locations: University of Massachusetts Medical School, Worcester, Massachusetts, United States