Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!
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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Demyelinating Diseases
Hypomyelination
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Overview
Demyelinating diseases are conditions resulting in damage to brain or nerves, which connects the muscles to the brain to create movement. These disorders specifically affect the protective covering that surrounds nerve fibers consequently causing neurological problems. Symptoms vary according to the disease location, however seizures, headaches, delirium, confusion or slurred speech most commonly occur. Some may also experience pain, numbness, vision, hearing, or bladder problems. Diagnostic tests vary depending on the specific condition, however most demyelinating diseases can be identified from a brain scan and nerve test. No cures exist for demyelinating diseases; the goal of treatment is management of symptoms. Treatment will often include medications and occupational ot physical therapy if needed.
Trusted Medical Sites
Genetic & Rare Diseases Information Center (GARD)
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
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FSHD Basics
A brief overview of the disease.
Migraine Signs and Symptoms
A migraine is a throbbing or pulsating headache that is often one sided (unilateral) and associated with nausea; vomiting; sensitivity to light, sound, and smells; sleep disruption; and depression.
Antiphospholipid Antibody Syndrome
This pamphlet is a layman’s terms summary of Antiphospholipid Syndrome (APS). It covers such topics as diagnosis, symptoms, treatment, and coping. It is meant for patients newly diagnosed, however would also be good for informing friends and family