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Carnitine palmitoyltransferase II deficiency, lethal neonatal

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Support Type
Support Services
Displaying 1-10 of 27 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides ...
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
The Association for Molecular Pathology (AMP) is a professional association founded in 1995 to provide structure and leadership to the then-emerging field of molecular diagnostics. Through its Council and Committees, AMP pursues topics of importance to those at the forefront ...
Area Served: Minnesota
Established: 2012
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case.
Area Served: International
Established: 2008
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Jun 2019
VISION STATEMENT A future without Dupuytren disease. MISSION STATEMENT Our mission is to do whatever is needed to develop and test preventive treatments for Dupuytren disease and related conditions. Our core effort focuses on answering the greatest need in Dupuytren treatment: developing ...
Area Served: International
Established: 1991
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to connect and network with FOD Families and professionals around the world and to provide ongoing emotional and grief support, family stories, practical information about living with these disorders, and medical updates to inform families of new ...
Area Served: United States
Established: 2005
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
MitoAction is a nonprofit organization dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
Area Served: United Kingdom
Established: 2016
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Area Served: United States
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 15 Jun 2019
The United Mitochondrial Disease Foundation strives to promote research and education for the diagnosis, treatment and cures of mitochondrial disorders and to provide support to affected individuals and families.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.