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Cardiomyopathy

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Support Type
Support Services
Displaying 1-10 of 25 results.
Area Served: International
Established: 2000
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 12 Jun 2020
Our mission is saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
Area Served: International
Established: 1989
501(c)3 Nonprofit: No
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. The charity helps families through cardiomyopathy support nurses, information days, support groups and a network of affected volunteers who ...
Area Served: International
Established: 2002
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 26 May 2020
Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf ...
Area Served: International
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 8 Jun 2020
Team Titin is a consortium of scientists and affected community members whose mission is to connect, educate and inspire researchers, clinicians and families with a focus on titin-related muscle and heart disorders.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.
Area Served: United Kingdom
Established: 1979
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 14 Jul 2020
Contact improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for ...
Area Served: Netherlands
Established: 2000
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 26 May 2020
Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of ...
Area Served: Regional (United States)
Established: 1969
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jul 2020
To improve services for all children with disabilities.