# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Bardet-Biedl Syndrome

Laurence-Moon-Bardet-Biedl syndromeLaurence-Moon syndrome
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Support Type
Support Services
Displaying 21-23 of 23 results.
Area Served: National
Established: 1972
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 4 Nov 2019
When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, ...
Established: 1969
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
Our mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
Area Served: International
Established: 2007
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 29 Dec 2019
Our mission is to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.