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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


Autism Spectrum Disorders

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Type of Disease: Pediatric onset Behavioral and mental health disorders Rare Condition or Disease

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.
Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 5 results.
Medical Topics of Interest
Added On: May 30, 2020
Category: General
Language(s): English
Smith-Kingsmore Syndrome Foundation interviews doctors and researchers on medical topics of interest for our families.
Family Support Blog
Added On: May 30, 2020
Category: Blogs
Language(s): English
Blogs on this site are written by Kristen, President of Smith-Kingsmore Syndrome Foundation, and a mom of Jack, who has Smith-Kingsmore syndrome. She writes this blog to help special needs families know they are not alone.
CDKL5 Resource Library
Publish Date: Jun 13, 2019
Category: General
Language(s): English
Resource guides are available covering topics of Newly Diagnosed, Finding Your New Normal, Medical Advocacy, Educational Advocacy, Transition to Adult Care, and Clinical Care. Video from past conferences covering a broad range of therapeutic topics.
KCNQ2 Cure Alliance Website
Added On: Dec 12, 2015
Category: General
KCA's website provides information for caregivers and professional on the diagnosis, management, and treatment of KCNQ2 encephalopathy.
Family Resources
Added By: Idic15 Canada
Added On: Oct 1, 2014
Category: General
please Contact us for an info booklet on the syndrome Chromosome 15q11.2-13.1 Duplication via email tlmckirdy@gmail.com