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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


22q11.2 Deletion Syndrome

DiGeorge sequenceShprintzen syndromeDiGeorge SyndromeVelocardiofacial Syndrome (VCFS)Conotruncal Anomaly Face Syndrome (CTAF)
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Type of Disease: Rare Condition or Disease Chromosomal Genetic, autosomal dominant Developmental disability (both intellectual and physical disabilities)

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.
Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-5 of 18 results.
Transition to Adult Life Resources for Health Practitioners
Added On: Jul 17, 2019
Category: General
Explains what Transition to Adulthood is, who is eligible for transition services, who provides transition services, involved agencies, and more.
Health Coverage Options for Autism and Other Developmental Disabilities: A Guide for Parents and Professionals
Added On: Jul 17, 2019
Category: General
Includes information on types of health plans, laws for people with disabilities, and access to healthcare.
Economic & Health-Related Resources
Added On: Jul 17, 2019
Category: General
Health, economic assistance, early childhood health and special healthcare needs, disability/special healthcare, mental health, family support, and legal resources. Includes resources that were created by the SPAN Parent Advocacy Network.
FSHD Basics
Added On: Jul 15, 2019
Category: General
Language(s): English
A brief overview of the disease.
Mal de Debarquement Foundation Blog
Publish Date: Jun 14, 2019
Category: Blogs
Language(s): Translator on website
Read experiences of those living with Mal de Debarquement Syndrome in the blog. If you would like to add your experience please send it to connect@mddsfoundation for vetting and review.