Intravenous leiomyomatosis

Common Name(s)

Intravenous leiomyomatosis

Intravenous leiomyomatosis (IVL) is a benign smooth muscle tumor of the uterus that grows within the veins but does not invade the surrounding tissue. IVL usually starts in the veins of the uterus and can extend into the inferior vena cava and ultimately into the right side of the heart, resulting in death The abnormal smooth muscle cells that cause IVL express estrogen and progesterone receptors and tumor growth thus appears to respond to these hormones. Although this is a benign condition, many affected individuals require surgery to remove the excess tissue in the uterus and heart. The exact cause of IVL remains unknown. IVL is rare, with only about 200 cases reported in the medical literature.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Intravenous leiomyomatosis" for support, advocacy or research.

There are currently no organizations listed in Disease InfoSearch that support this condition. Create a listing.

 

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
Top

How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Intravenous leiomyomatosis" for support, advocacy or research.

There are currently no organizations listed in Disease InfoSearch that support this condition. Create a listing.

 

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
Top

Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Intravenous leiomyomatosis" returned 26 free, full-text research articles on human participants. First 3 results:

eComment. Misdiagnosis of intravenous leiomyomatosis with cardiac extension.
 

Author(s): Senol Yavuz, Cuneyt Eris, Faruk Toktas

Journal: Interact Cardiovasc Thorac Surg. 2013 Jul;17(1):139.

 

Last Updated: 20 Jun 2013

Go To URL
[Ultrasonic characteristics of intravenous leiomyomatosis with intracardiac extension].
 

Author(s): Xiao-dong Zhang, Li-gang Fang, Sheng Cai, Ya-hong Wang, Zhong-hui Xu, Lei Wang, Jian-chu Li

Journal: Zhongguo Yi Xue Ke Xue Yuan Xue Bao. 2013 Feb;35(1):69-73.

 

To explore the sonographic characteristics of intraveous leiomyomatosis (IVL) with intracardiac extension and improve its diagnosis.

Last Updated: 8 Mar 2013

Go To URL
[Pelvic intravenous leiomyomatosis with intracardiac extension: report of two cases].
 

Author(s): Renato Mertens, Francisco Valdés, Cecilia Muñoz, Manuel Irarrázaval, Jorge Brañes, Carlos Riquelme, Leopoldo Mariné, Michel Bergoeing, Albrecht Krämer

Journal: Rev Med Chil. 2012 Jul;140(7):906-9.

 

Symptoms predominate. Diagnosis is based on clinical findings and appropriate imaging. We report two females, aged 35 and 51 years. One of them presented with a pelvic mass and dyspnea, the other patient had severe cardiac failure on admission. Computed axial tomography scan allowed ...

Last Updated: 3 Jan 2013

Go To URL

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Intravenous leiomyomatosis" returned 1 free, full-text review articles on human participants. First 3 results:

Intravenous leiomyomatosis with cardiac extension: tumor thrombectomy through an abdominal approach.
 

Author(s): L M Harris, C P Karakousis

Journal: J. Vasc. Surg.. 2000 May;31(5):1046-51.

 

Intravenous leiomyomatosis is an uncommon vascular tumor that may be seen with potentially life-threatening symptoms resulting from intracardiac extension. This tumor is frequently misdiagnosed and treated without appropriate preoperative imaging and planning, which at times leads ...

Last Updated: 7 Jul 2000

Go To URL
 
 
Top

Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
Top

Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.