Autism Spectrum Disorders

Common Name(s)

Autism Spectrum Disorders

Autism spectrum disorders (ASD) are a group of developmental conditions characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. Autistic disorder, sometimes called autism or classical ASD, is the most severe form of ASD, while other conditions along the spectrum include a milder form known as Asperger syndrome as well as childhood disintegrative disorder and pervasive developmental disorder not otherwise specified (PDD-NOS). Although ASD varies significantly in features and severity, it occurs worldwide and affects every age group. Experts estimate that 1 out of 110 children will have an ASD.  Males are more likely to have an ASD than females.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Autism Spectrum Disorders" for support, advocacy or research.

ACDS

ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.

Last Updated: 29 Apr 2014

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Autism Science Foundation

The Autism Science Foundation supports autism research by providing funding directly to scientists conducting cutting-edge autism research. ASF also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

Last Updated: 15 Feb 2013

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Cherab Foundation

We are a world-wide nonprofit organization working to improve the communication skills, education, and advocacy of the verbal disabled; all those with speech and language delays or impairments. Our area of emphasis is verbal apraxia which used to be rare but has been on the rise. We are committed to assisting with the development of new therapeutic approaches, preventions and cures to neurologically-based speech disorders that affect all ages with a focus on children. We bring together families, affected individuals, and medical, research, speech, and educational professionals.

Last Updated: 26 Mar 2013

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CNS Foundation

CNS Foundation's Mission is Three-fold: - Expedite scientific research to find treatments and cures for the more than 14 million children living with some form of neurological disorder - Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology - Educate the public, and public officials, on the critical importance of funding pediatric neurological disorder research

Last Updated: 12 Oct 2013

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Friends of Autism, Inc.

Friends of Autism was established in 2000 as the only autism charity in Wisconsin dedicated to raising money to fund autism research, awareness, and education. Friends of Autism is powered by volunteers and relied upon by parents and professionals throughout the state.

Last Updated: 11 Mar 2013

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Idic15 Canada

Idic15 Canada is a national non-profit with a Global reach, responsible for expediting quality, coordination, accessibility and research of medical care and social support innovations for families living with the rare disorder Chromosome 15q11.2-13.1 Duplication Syndrome. We will uphold our mission by: Providing information and emotional support to individuals with Chromosome 15q11.2-13.1 Duplication Syndrome, their families, and the professionals who work with them. Developing resources and increasing global awareness and understanding of this syndrome to help build medical collaborations globally. Encouraging, supporting, and raising funds for global research into a wide range of issues related to this Syndrome. Idic15 Canada has facilitated the development of 4 national syndrome specific clinics and coordinated medical teams throughout the country. We also have the development of a Chromosome 15q11.2-13.1 Duplication Syndrome patient registry designed to spark in

Last Updated: 1 Oct 2014

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International Foundation for CDKL5 Research

To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts and increasing awareness while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services.

Last Updated: 19 Feb 2013

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Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

Last Updated: 2 Aug 2013

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Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

Last Updated: 15 Apr 2014

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Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

Last Updated: 15 Apr 2013

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Pathfinders for Autism

Our mission is simple – to improve the lives of individuals with autism and the people who care for them. We accomplish this through a variety of programs and services, all of which are offered FREE of charge

Last Updated: 4 Apr 2013

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The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

Last Updated: 11 Apr 2013

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The Arc of Illinois

The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices.

Last Updated: 8 Apr 2013

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General Support Organizations

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How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Autism Spectrum Disorders" for support, advocacy or research.

ACDS

ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.

http://www.acds.org

Last Updated: 29 Apr 2014

View Details
Logo
Autism Science Foundation

The Autism Science Foundation supports autism research by providing funding directly to scientists conducting cutting-edge autism research. ASF also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

http://www.autismsciencefoundation.org

Last Updated: 15 Feb 2013

View Details
Cherab Foundation

We are a world-wide nonprofit organization working to improve the communication skills, education, and advocacy of the verbal disabled; all those with speech and language delays or impairments. Our area of emphasis is verbal apraxia which used to be rare but has been on the rise. We are committed to assisting with the development of new therapeutic approaches, preventions and cures to neurologically-based speech disorders that affect all ages with a focus on children. We bring together families, affected individuals, and medical, research, speech, and educational professionals.

http://www.cherabfoundation.org

Last Updated: 26 Mar 2013

View Details
Logo
CNS Foundation

CNS Foundation's Mission is Three-fold: - Expedite scientific research to find treatments and cures for the more than 14 million children living with some form of neurological disorder - Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology - Educate the public, and public officials, on the critical importance of funding pediatric neurological disorder research

http://www.cnsfoundation.org

Last Updated: 12 Oct 2013

View Details
Logo
Friends of Autism, Inc.

Friends of Autism was established in 2000 as the only autism charity in Wisconsin dedicated to raising money to fund autism research, awareness, and education. Friends of Autism is powered by volunteers and relied upon by parents and professionals throughout the state.

http://www.friendsofautism.org

Last Updated: 11 Mar 2013

View Details
Idic15 Canada

Idic15 Canada is a national non-profit with a Global reach, responsible for expediting quality, coordination, accessibility and research of medical care and social support innovations for families living with the rare disorder Chromosome 15q11.2-13.1 Duplication Syndrome. We will uphold our mission by: Providing information and emotional support to individuals with Chromosome 15q11.2-13.1 Duplication Syndrome, their families, and the professionals who work with them. Developing resources and increasing global awareness and understanding of this syndrome to help build medical collaborations globally. Encouraging, supporting, and raising funds for global research into a wide range of issues related to this Syndrome. Idic15 Canada has facilitated the development of 4 national syndrome specific clinics and coordinated medical teams throughout the country. We also have the development of a Chromosome 15q11.2-13.1 Duplication Syndrome patient registry designed to spark in

http://www.idic15canada.ca

Last Updated: 1 Oct 2014

View Details
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International Foundation for CDKL5 Research

To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts and increasing awareness while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services.

http://www.CDKL5.com

Last Updated: 19 Feb 2013

View Details
Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

http://www.isabellasaviary.com

Last Updated: 2 Aug 2013

View Details
Logo
Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

http://www.mofamilytofamily.org

Last Updated: 15 Apr 2014

View Details
Logo
Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

http://www.oklahomafamilynetwork.org

Last Updated: 15 Apr 2013

View Details
Pathfinders for Autism

Our mission is simple – to improve the lives of individuals with autism and the people who care for them. We accomplish this through a variety of programs and services, all of which are offered FREE of charge

http://www.pathfindersforautism.org

Last Updated: 4 Apr 2013

View Details
The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

http://www.arceci.org

Last Updated: 11 Apr 2013

View Details
The Arc of Illinois

The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices.

http://www.thearcofil.org/

Last Updated: 8 Apr 2013

View Details

 

General Support Organizations

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General Resources

Family Resources

Supports, ideas, tools and more are available for families to review in the Family Resources category. Learn about financial benefits in your province, to a printable caregiver sheet.

Uploaded By: Idic15 Canada

Updated 1 Oct 2014

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Autism Spectrum Disorders" returned 511 free, full-text research articles on human participants. First 3 results:

An etiologic classification of autism spectrum disorders.
 

Author(s): Lidia V Gabis, John Pomeroy

Journal: Isr. Med. Assoc. J.. 2014 May;16(5):295-8.

 

Autism spectrum disorders (ASD) represent a common phenotype related to multiple etiologies, such as genetic, brain injury (e.g., prematurity), environmental (e.g., viral, toxic), multiple or unknown causes.

Last Updated: 1 Jul 2014

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Open questions: what has genetics told us about autism spectrum disorders?
 

Author(s): Martin Raff

Journal:

 

Some of the most interesting questions in biology today, in my view, derive from the real advances in neuropsychiatry that have come largely from human genetics. Research in autism spectrum disorders (ASDs) has been leading the way, mainly because it has become especially well funded ...

Last Updated: 6 Jun 2014

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Difficulties in everyday life: young persons with attention-deficit/hyperactivity disorder and autism spectrum disorders perspectives. A chat-log analysis.
 

Author(s): Britt H Ahlström, Elisabet Wentz

Journal:

 

This study focuses on the everyday life of young persons with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD). There are follow-up studies describing ADHD, and ASD in adults, and residual impairments that affect life. Few qualitative studies have ...

Last Updated: 30 May 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Autism Spectrum Disorders" returned 106 free, full-text review articles on human participants. First 3 results:

Systematic review of the properties of tools used to measure outcomes in anxiety intervention studies for children with autism spectrum disorders.
 

Author(s): Sarah Wigham, Helen McConachie

Journal:

 

Evidence about relevant outcomes is required in the evaluation of clinical interventions for children with autism spectrum disorders (ASD). However, to date, the variety of outcome measurement tools being used, and lack of knowledge about the measurement properties of some, compromise ...

Last Updated: 27 Jan 2014

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Applied behavior analysis and autism spectrum disorders: literature review.
 

Author(s): Fernanda Dreux Miranda Fernandes, Cibelle Albuquerque de la Higuera Amato

Journal: Codas. 2013 ;25(3):289-96.

 

Systematic literature review about Applied Behavior Analysis (ABA) proposals directed towards persons with Autistic Spectrum Disorders aiming to contribute to a truly evidence-based practice.

Last Updated: 10 Jan 2014

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Non-specialist psychosocial interventions for children and adolescents with intellectual disability or lower-functioning autism spectrum disorders: a systematic review.
 

Author(s): Brian Reichow, Chiara Servili, M Taghi Yasamy, Corrado Barbui, Shekhar Saxena

Journal: PLoS Med.. 2013 Dec;10(12):e1001572; discussion e1001572.

 

The development of effective treatments for use by non-specialists is listed among the top research priorities for improving the lives of people with mental illness worldwide. The purpose of this review is to appraise which interventions for children with intellectual disabilities ...

Last Updated: 20 Dec 2013

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Clinical Trial Information This information is provided by ClinicalTrials.gov

Psychotherapy for Anxiety in Children With Autism Spectrum Disorder
 

Status: Recruiting

Condition Summary: Autism Spectrum Disorders; Autism; Asperger's Syndrome; Pervasive Developmental Disability - Not Otherwise Specified; Obsessive-compulsive Disorder; Social Phobia; Generalized Anxiety Disorder; Specific Phobia; Separation Anxiety Disorder

 

Last Updated: 28 Jul 2014

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Mitochondrial Dysfunction in Autism Spectrum Disorder
 

Status: Recruiting

Condition Summary: Autism Spectrum Disorder; Autism; Mitochondrial Disease; Developmental Delay

 

Last Updated: 27 Jun 2014

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Phenotypic and Genetic Factors in Autism Spectrum Disorders
 

Status: Recruiting

Condition Summary: Autism Spectrum Disorders

 

Last Updated: 13 Sep 2011

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