Tay-Sachs, Late Onset

Common Name(s)

Tay-Sachs, Late Onset

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Tay-Sachs, Late Onset" for support, advocacy or research.

Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

Last Updated: 26 Dec 2012

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Late Onset Tay-Sachs Research and Education Foundation

The Late Onset Tay-Sachs Research and Education Foundation was established in 2007 to educate and help people affected with this debilitating disease that strikes older children, teens and adults alike. We have gathered families, friends, doctors, medical researchers and people afflicted with Late Onset Tay-Sachs (LOTS). The world needs to know that Tay-Sachs affects others bedsides infants and very young children. In addition to providing information, support, networking and awareness, we raise funds to support medical research searching for innovative treatments and a cure.

Last Updated: 1 Jul 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Tay-Sachs, Late Onset" for support, advocacy or research.

Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

http://www.jewishgenetics.org

Last Updated: 26 Dec 2012

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Late Onset Tay-Sachs Research and Education Foundation

The Late Onset Tay-Sachs Research and Education Foundation was established in 2007 to educate and help people affected with this debilitating disease that strikes older children, teens and adults alike. We have gathered families, friends, doctors, medical researchers and people afflicted with Late Onset Tay-Sachs (LOTS). The world needs to know that Tay-Sachs affects others bedsides infants and very young children. In addition to providing information, support, networking and awareness, we raise funds to support medical research searching for innovative treatments and a cure.

http://www.lateonsettay-sachs.org/

Last Updated: 1 Jul 2013

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Tay-Sachs, Late Onset" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Tay-Sachs, Late Onset" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Gene Therapy for Tay-Sachs Disease
 

Status: Recruiting

Condition Summary: Tay Sachs Disease; Sandhoff Disease; Late Onset Tay Sachs Disease

 

Last Updated: 17 Dec 2013

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A Natural History Study of the Gangliosidoses
 

Status: Recruiting

Condition Summary: Tay Sachs Disease; Sandhoff Disease; Late Onset Tay Sachs Disease

 

Last Updated: 14 Jul 2014

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