Pulmonary Hypertension

Common Name(s)

Pulmonary Hypertension

Our mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pulmonary Hypertension" for support, advocacy or research.

Caring Voice Coalition,Inc,

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

Last Updated: 29 Apr 2014

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International Scleroderma Network

Our mission is to provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses.

Last Updated: 18 Apr 2010

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Kids with Heart National Association for Children's Heart Disorders

Our organization was formed in 1985 with the main mission of providing support, information, resources, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live with on a day to day basis.

Last Updated: 30 Oct 2012

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PHCentral

Pulmonary Hypertension Information, Support and Advocacy Since 1999

Last Updated: 19 Dec 2012

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Pulmonary Hypertension Association

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Last Updated: 25 Oct 2012

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pulmonary Hypertension" for support, advocacy or research.

Caring Voice Coalition,Inc,

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

http://www.caringvoice.org

Last Updated: 29 Apr 2014

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International Scleroderma Network

Our mission is to provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses.

http://www.sclero.org/

Last Updated: 18 Apr 2010

View Details
Kids with Heart National Association for Children's Heart Disorders

Our organization was formed in 1985 with the main mission of providing support, information, resources, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live with on a day to day basis.

http://www.kidswithheart.org

Last Updated: 30 Oct 2012

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PHCentral

Pulmonary Hypertension Information, Support and Advocacy Since 1999

http://www.phcentral.org

Last Updated: 19 Dec 2012

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Pulmonary Hypertension Association

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

http://www.PHAssociation.org

Last Updated: 25 Oct 2012

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Pulmonary Hypertension" returned 2441 free, full-text research articles on human participants. First 3 results:

Extramedullary pulmonary hematopoiesis causing pulmonary hypertension and severe tricuspid regurgitation detected by technetium-99m sulfur colloid bone marrow scan and single-photon emission computed tomography/CT.
 

Author(s): Syed Zama Ali, Michael John Clarke, Anbalagan Kannivelu, Dinesh Chinchure, Sivasubramanian Srinivasan

Journal: Korean J Radiol. 2014 May;15(3):376-80.

 

Extramedullary pulmonary hematopoiesis is a rare entity with a limited number of case reports in the available literature only. We report the case of a 66-year-old man with known primary myelofibrosis, in whom a Technetium-99m sulfur colloid bone marrow scan with single-photon emission ...

Last Updated: 20 May 2014

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Assessment of perfusion pattern and extent of perfusion defect on dual-energy CT angiography: correlations between the causes of pulmonary hypertension and vascular parameters.
 

Author(s): Eun Young Kim, Joon Beom Seo, Sang Young Oh, Choong Wook Lee, Hye Jeon Hwang, Sang Min Lee, Young Kyung Lee

Journal: Korean J Radiol. ;15(2):286-94.

 

To assess perfusion patterns on a dual-energy pulmonary CT angiography (DECTA) of pulmonary hypertension (PHT) with variable causes and to assess whether the extent of perfusion defect can be used in the severity assessment of PHT.

Last Updated: 19 Mar 2014

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Epidemiology and long-term survival of pulmonary arterial hypertension in the Czech Republic: a retrospective analysis of a nationwide registry.
 

Author(s): Pavel Jansa, Jiri Jarkovsky, Hikmet Al-Hiti, Jana Popelova, David Ambroz, Tomas Zatocil, Regina Votavova, Pavel Polacek, Jana Maresova, Michael Aschermann, Petr Brabec, Ladislav Dusek, Ales Linhart

Journal:

 

Pulmonary arterial hypertension (PAH) is a severe and progressive disease characterized by increased pulmonary vascular resistance, ultimately leading to right heart failure and death. Epidemiological data from national registries are growing worldwide, but are still unavailable in Eastern Europe.

Last Updated: 21 Mar 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Pulmonary Hypertension" returned 488 free, full-text review articles on human participants. First 3 results:

Chronic thromboembolic pulmonary hypertension (CTEPH) - potential role of multidetector-row CT (MD-CT) and MR imaging in the diagnosis and differential diagnosis of the disease.
 

Author(s): G Wirth, K Brüggemann, T Bostel, E Mayer, C Düber, K F Kreitner

Journal: Rofo. 2014 Aug;186(8):751-61.

 

Chronic thromboembolic pulmonary hypertension (CTEPH) can be defined as pulmonary hypertension (resting mean pulmonary arterial pressure of 25 mm Hg or more determined at right heart catheterization) with persistent pulmonary perfusion defects. It is a rare, but underdiagnosed disease ...

Last Updated: 17 Jul 2014

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Prenatal exposure to antidepressants and persistent pulmonary hypertension of the newborn: systematic review and meta-analysis.
 

Author(s): Sophie Grigoriadis, Emily H Vonderporten, Lana Mamisashvili, George Tomlinson, Cindy-Lee Dennis, Gideon Koren, Meir Steiner, Patricia Mousmanis, Amy Cheung, Lori E Ross

Journal:

 

To examine the risk for persistent pulmonary hypertension of the newborn associated with antenatal exposure to antidepressants.

Last Updated: 16 Jan 2014

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New trial designs and potential therapies for pulmonary artery hypertension.
 

Author(s): Mardi Gomberg-Maitland, Todd M Bull, Rajeev Saggar, Robyn J Barst, Amany Elgazayerly, Thomas R Fleming, Friedrich Grimminger, Maurizio Rainisio, Duncan J Stewart, Norman Stockbridge, Carlo Ventura, Ardeschir H Ghofrani, Lewis J Rubin

Journal: J. Am. Coll. Cardiol.. 2013 Dec;62(25 Suppl):D82-91.

 

A greater understanding of the epidemiology, pathogenesis, and pathophysiology of pulmonary artery hypertension (PAH) has led to significant advances, but the disease remains fatal. Treatment options are neither universally available nor always effective, underscoring the need for ...

Last Updated: 20 Dec 2013

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Safety and Tolerability of Macitentan in Subjects With Combined Pre- and Post-capillary Pulmonary Hypertension Due to Left Ventricular Dysfunction
 

Status: Recruiting

Condition Summary: Pre-capillary Pulmonary Hypertension; Post-capillary Pulmonary Hypertension; Left Ventricular Dysfunction

 

Last Updated: 28 Aug 2014

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Latent Pulmonary Hypertension (PH) in Chronic Thromboembolic Pulmonary Hypertension (CTEPH )After Endarterectomy and Influence of Exercise and Respiratory Therapy
 

Status: Recruiting

Condition Summary: Pulmonary Hypertension; Chronic Thromboembolic Pulmonary Hypertension

 

Last Updated: 1 Jul 2014

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Zürich Pulmonary Hypertension Outcome Assessment Cohort
 

Status: Recruiting

Condition Summary: Pulmonary Hypertension Outcome Assessment

 

Last Updated: 25 Sep 2014

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