Pulmonary Hypertension

Common Name(s)

Pulmonary Hypertension

Our mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pulmonary Hypertension" for support, advocacy or research.

Caring Voice Coalition,Inc,

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

Last Updated: 29 Apr 2014

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International Scleroderma Network

Our mission is to provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses.

Last Updated: 18 Apr 2010

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Kids with Heart National Association for Children's Heart Disorders

Our organization was formed in 1985 with the main mission of providing support, information, resources, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live with on a day to day basis.

Last Updated: 30 Oct 2012

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PHCentral

Pulmonary Hypertension Information, Support and Advocacy Since 1999

Last Updated: 19 Dec 2012

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Pulmonary Hypertension Association

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Last Updated: 25 Oct 2012

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pulmonary Hypertension" for support, advocacy or research.

Caring Voice Coalition,Inc,

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

http://www.caringvoice.org

Last Updated: 29 Apr 2014

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International Scleroderma Network

Our mission is to provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses.

http://www.sclero.org/

Last Updated: 18 Apr 2010

View Details
Kids with Heart National Association for Children's Heart Disorders

Our organization was formed in 1985 with the main mission of providing support, information, resources, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live with on a day to day basis.

http://www.kidswithheart.org

Last Updated: 30 Oct 2012

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PHCentral

Pulmonary Hypertension Information, Support and Advocacy Since 1999

http://www.phcentral.org

Last Updated: 19 Dec 2012

View Details
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Pulmonary Hypertension Association

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

http://www.PHAssociation.org

Last Updated: 25 Oct 2012

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Pulmonary Hypertension" returned 2558 free, full-text research articles on human participants. First 3 results:

Right ventricular adaptation to pulmonary pressure load in patients with chronic thromboembolic pulmonary hypertension before and after successful pulmonary endarterectomy--a cardiovascular magnetic resonance study.
 

Author(s): Andreas Rolf, Johannes Rixe, Won K Kim, Johannes Börgel, Helge Möllmann, Holger M Nef, Christoph Liebetrau, Thorsten Kramm, Stefan Guth, Gabriele A Krombach, Eckhard Mayer, Christian W Hamm

Journal:

 

The aim of the study was to characterize RV adaptation to varying loading conditions in patients with chronic thromboembolic hypertension (CTEPH) before and after pulmonary endarterectomy (PEA). Nearly 4% of patients with pulmonary embolism develop CTEPH. PEA offers a cure with excellent ...

Last Updated: 5 Dec 2014

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RV-pulmonary arterial coupling predicts outcome in patients referred for pulmonary hypertension.
 

Author(s): Rebecca R Vanderpool, Michael R Pinsky, Robert Naeije, Christopher Deible, Vijaya Kosaraju, Cheryl Bunner, Michael A Mathier, Joan Lacomis, Hunter C Champion, Marc A Simon

Journal: Heart. 2015 Jan;101(1):37-43.

 

Prognosis in pulmonary hypertension (PH) is largely determined by RV function. However, uncertainty remains about what metrics of RV function might be most clinically relevant. The purpose of this study was to assess the clinical relevance of metrics of RV functional adaptation to ...

Last Updated: 16 Dec 2014

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Alternatives to the six-minute walk test in pulmonary arterial hypertension.
 

Author(s): Vincent Mainguy, Simon Malenfant, Anne-Sophie Neyron, Didier Saey, François Maltais, Sébastien Bonnet, Steeve Provencher

Journal:

 

The physiological response during the endurance shuttle walk test (ESWT), the cycle endurance test (CET) and the incremental shuttle walk test (ISWT) remains unknown in PAH. We tested the hypothesis that endurance tests induce a near-maximal physiological demand comparable to incremental ...

Last Updated: 12 Aug 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Pulmonary Hypertension" returned 515 free, full-text review articles on human participants. First 3 results:

Macitentan for the treatment of pulmonary arterial hypertension.
 

Author(s): Cyrus A Kholdani, Wassim H Fares, Terence K Trow

Journal:

 

Macitentan is the most recently approved dual endothelin-receptor antagonist (ERA) for the treatment of symptomatic pulmonary arterial hypertension. Compared to other available ERAs, it demonstrates superior receptor-binding properties, with consequently improved tissue penetration, ...

Last Updated: 4 Dec 2014

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[Reversible pulmonary arterial hypertension related to dasatinib in the treatment for chronic myelogenous leukemia: a case report and literature review].
 

Author(s): Bingcheng Liu, Ying Wang, Yingchang Mi, Jianxiang Wang

Journal: Zhonghua Xue Ye Xue Za Zhi. 2014 Jul;35(7):581-6.

 

To study the clinical features and prognosis of pulmonary arterial hypertension associated with dasatinib.

Last Updated: 23 Jul 2014

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Pulmonary arterial hypertension in adults: novel drugs and catheter ablation techniques show promise? Systematic review on pharmacotherapy and interventional strategies.
 

Author(s): Salvatore Rosanio, Francesco Pelliccia, Carlo Gaudio, Cesare Greco, Abdul M Keylani, Darrin C D'Agostino

Journal: Biomed Res Int. 2014 ;2014():743868.

 

This systematic review aims to provide an update on pharmacological and interventional strategies for the treatment of pulmonary arterial hypertension in adults. Currently US Food and Drug Administration approved drugs including prostanoids, endothelin-receptor antagonists, phosphodiesterase ...

Last Updated: 11 Jul 2014

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Safety and Tolerability of Macitentan in Subjects With Combined Pre- and Post-capillary Pulmonary Hypertension Due to Left Ventricular Dysfunction
 

Status: Recruiting

Condition Summary: Pre-capillary Pulmonary Hypertension; Post-capillary Pulmonary Hypertension; Left Ventricular Dysfunction

 

Last Updated: 12 Jan 2015

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Latent Pulmonary Hypertension (PH) in Chronic Thromboembolic Pulmonary Hypertension (CTEPH )After Endarterectomy and Influence of Exercise and Respiratory Therapy
 

Status: Recruiting

Condition Summary: Pulmonary Hypertension; Chronic Thromboembolic Pulmonary Hypertension

 

Last Updated: 1 Jul 2014

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Zürich Pulmonary Hypertension Outcome Assessment Cohort
 

Status: Recruiting

Condition Summary: Pulmonary Hypertension Outcome Assessment

 

Last Updated: 25 Sep 2014

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