Progressive hemifacial atrophy
Common Name(s)
Progressive hemifacial atrophy, Parry-Romberg Syndrome
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Progressive hemifacial atrophy" for support, advocacy or research.
How do you compare to others with this condition?
Privately answer questions about your health. Let resources, you select, come to you.
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Progressive hemifacial atrophy" for support, advocacy or research.
Recommended Apps
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Finding the right clinical trial for Progressive hemifacial atrophy can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.
Scientific Literature
Articles from the PubMed Database
Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Progressive hemifacial atrophy" returned 7 free, full-text research articles on human participants.
First 3 results:
Journal: Medicine (Baltimore). 2016 Nov;95(47):e5390.
Progressive hemifacial atrophy (PHA) is a rare disorder characterized by unilateral facial atrophy affecting the skin, subcutaneous tissue, and fat, muscle, and osteocartilagenous structures creating a sunken hemiface appearance.Etiopathogenesis of PHA is poorly understood; no definitive ...
Journal: Indian J Ophthalmol. 2015 Jan;63(1):61-3.
Progressive hemifacial atrophy (PHA) is a disease of unknown etiology affecting one-half of the face. Ocular involvement is uncommon. Atrophy of iris is rare, with only a few cases of partial atrophy being reported in the literature. We report a case of total atrophy of iris and ciliary ...
Journal: Trans Am Ophthalmol Soc. 1995 ;93():203-15; discussion 215-7.
To describe two very different natural history courses in 2 patients with hemifacial atrophy. Progressive hemifacial atrophy (Parry-Romberg syndrome, Romberg syndrome, PHA) is characterized by slowly progressive atrophy, frequently involving only one side of the face, primarily affecting ...
To view other free, full-text articles on human participants, please click on the link below.
Reviews from the PubMed Database
Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Progressive hemifacial atrophy" returned 3 free, full-text review articles on human participants.
First 3 results:
Journal:
Progressive Hemifacial Atrophy (PHA) is an acquired, typically unilateral, facial distortion with unknown etiology. The true incidence of this disorder has not been reported, but it is often regarded as a subtype of localized scleroderma. Historically, a debate existed whether PHA ...
Journal: An Bras Dermatol. ;86(4 Suppl 1):S85-8.
Parry-Romberg syndrome, also known as progressive hemifacial atrophy, is a rare disorder characterized by slow and progressive hemifacial atrophy. The treatment offered for the syndrome generally aims at improving aesthetics. Fat grafts, silicone injections or acrylic prosthesis are ...
Journal:
Progressive Hemifacial Atrophy, also known as Parry-Romberg Syndrome, is an uncommon degenerative and poorly understood condition. It is characterized by a slow and progressive atrophy affecting one side of the face. The incidence and the cause of this alteration is unknown. A cerebral ...
To view other free, full-text review articles on human participants, please click on the link below.
Symptoms, Diagnosis, and Treatment
https://ghr.nlm.nih.gov/condition/multiple-system-atrophy
https://ghr.nlm.nih.gov/condition/spinal-muscular-atrophy-with-progressive-myoclonic-epilepsy
https://ghr.nlm.nih.gov/condition/dentatorubral-pallidoluysian-atrophy
https://ghr.nlm.nih.gov/condition/optic-atrophy-type-1
https://ghr.nlm.nih.gov/condition/gyrate-atrophy-of-the-choroid-and-retina
https://ghr.nlm.nih.gov/gene/TTBK2
https://ghr.nlm.nih.gov/condition/spinal-and-bulbar-muscular-atrophy
https://ghr.nlm.nih.gov/condition/choroideremia
https://ghr.nlm.nih.gov/condition/benign-essential-blepharospasm
https://ghr.nlm.nih.gov/condition/pontocerebellar-hypoplasia
https://ghr.nlm.nih.gov/condition/spinocerebellar-ataxia-type-1
https://ghr.nlm.nih.gov/gene/VAPB
https://ghr.nlm.nih.gov/condition/lafora-progressive-myoclonus-epilepsy
https://ghr.nlm.nih.gov/condition/progressive-supranuclear-palsy
https://ghr.nlm.nih.gov/condition/progressive-familial-heart-block
https://ghr.nlm.nih.gov/condition/progressive-familial-intrahepatic-cholestasis
https://ghr.nlm.nih.gov/condition/progressive-pseudorheumatoid-dysplasia
https://ghr.nlm.nih.gov/condition/progressive-osseous-heteroplasia
https://ghr.nlm.nih.gov/condition/progressive-external-ophthalmoplegia
There are currently no related results available in GeneReviews.
There are currently no related results available in Genetic Testing Registry.
Clinical Trial Information This information is provided by ClinicalTrials.gov
There are currently no open clinical trials for this condition.
Finding the right clinical trial for Progressive hemifacial atrophy can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.