Arnold Chiari Malformation

Common Name(s)

Arnold Chiari Malformation

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Arnold Chiari Malformation" for support, advocacy or research.

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American Syringomyelia & Chiari Alliance Project, Inc.

To improve the lives of people affected by syringomyelia, Chiari malformation and related disorders, while we find the cure.

Last Updated: 30 Oct 2012

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Chiari & Syringomyelia Foundation

Our mission is to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

Last Updated: 18 Mar 2013

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Spina Bifida Resource

Spina Bifida Resource's mission is to promote the prevention of spina bifida and its secondary conditions and to enhance the health and well-being of those affected.

Last Updated: 15 Nov 2012

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World Arnold Chiari Malformation Association

Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this disease and how it affects the lives of those who have it.

Last Updated: 20 Feb 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Arnold Chiari Malformation" for support, advocacy or research.

Logo
American Syringomyelia & Chiari Alliance Project, Inc.

To improve the lives of people affected by syringomyelia, Chiari malformation and related disorders, while we find the cure.

http://www.asap.org

Last Updated: 30 Oct 2012

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Chiari & Syringomyelia Foundation

Our mission is to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

http://www.CSFinfo.org

Last Updated: 18 Mar 2013

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Spina Bifida Resource

Spina Bifida Resource's mission is to promote the prevention of spina bifida and its secondary conditions and to enhance the health and well-being of those affected.

http://spinabifidaresource.weebly.com/

Last Updated: 15 Nov 2012

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World Arnold Chiari Malformation Association

Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this disease and how it affects the lives of those who have it.

http://www.wacma.com/

Last Updated: 20 Feb 2013

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General Support Organizations

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General Resources

Vimeo Resource

Related Disorders Lecture Series

Updated 7 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Arnold Chiari Malformation" returned 38 free, full-text research articles on human participants. First 3 results:

Acute porphyria in a patient with Arnold Chiari malformation.
 

Author(s): Jianbin Shen, Kevin O'Keefe, Lisa B Webb, Angela DeGirolamo

Journal:

 

Acute porphyria and Arnold Chiari malformation are both uncommon genetic disorders without known association. The insidious onset, non-specific clinical manifestations, and precipitating factors often cause diagnosis of acute porphyria to be missed, particularly in patients with comorbidities.

Last Updated: 20 Feb 2015

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Psychotic and major neurocognitive disorder secondary to arnold-chiari type II malformation.
 

Author(s): Linda Hoederath, Lena Jellestad, Josef Jenewein, Soenke Boettger

Journal: Psychiatr Danub. 2014 Sep;26(3):291-3.

 

Last Updated: 6 Sep 2014

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Scapular winging in a patient with Arnold-Chiari malformation type 1 and syringomyelia.
 

Author(s): Vijay Chandran, Rohit Pai, Anirudda Deshpande

Journal:

 

Last Updated: 1 Apr 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Arnold Chiari Malformation" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Posterior Fossa Decompression With or Without Duraplasty for Chiari Type I Malformation With Syringomyelia
 

Status: Not yet recruiting

Condition Summary: Arnold-Chiari Malformation, Type 1; Chiari Malformation Type I; Type I Arnold-Chiari Malformation; Syringomyelia

 

Last Updated: 27 Apr 2016

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Genetic Analysis of the Chiari I Malformation
 

Status: Recruiting

Condition Summary: Syringomyelia; Type I Arnold Chiari Malformation

 

Last Updated: 26 Sep 2015

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Efficacy of Acetaminophen in Posterior Fossa Surgery
 

Status: Recruiting

Condition Summary: Arnold-Chiari Malformation; Posterior Fossa Tumors

 

Last Updated: 1 Jun 2016

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