Multiple Endocrine Neoplasia

Common Name(s)

Multiple Endocrine Neoplasia

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Multiple Endocrine Neoplasia" for support, advocacy or research.

AMEND

AMEND exists to inform and support anyone affected by multiple endocrine neoplasia disorders and associated endocrine tumors and syndromes, and to encourage and fund research into the conditions through our Annual Research Grant program and Young Investigator Awards. We provide free patient-aimed information resources, including the MEN Passport and AMEND-sponsored children's comics. We also run a variety of free educational events in the UK and USA as well as social and fundraising events. The AMEND website is HONCode certified and the charity runs several social media pages and groups (private and public).

Last Updated: 29 Apr 2014

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American Multiple Endocrine Neoplasia

The Hageman Foundation supports patient advocacy for a rare disease called Multiple Endocrine Neoplasia. This disease is so elusive that we are the only non-profit in this country which supports the thousands of patients who have this genetic disease. The Hageman Foundation’s mission is to provide education, support and research, using accurate, up-to-date, medical information on Multiple Endocrine Neoplasia (MEN), otherwise referred to as MEN1, MEN2A, MEN2B, and the Whipple Procedure, which is detailed on our website: HagemanFoundation.org. The Hageman Foundation’s current initiative is to provide educational seminars and an educational website, AMENsupport.org, which is designed for the patients, their families, and their advisors who would otherwise not have the means or wherewithal to obtain the information and guidance.

Last Updated: 15 Feb 2013

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Canadian Multiple Endocrine Neoplasia Society, Inc.

We help people with MEN by referring them to Drs and genetist. We also offer emotional support and literature We can be contacted anytime via email. We do try to find a member close to the newly diagnosed MEN Patient to let them know that "They Are Not Alone"

Last Updated: 31 Jan 2013

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Multiple Endocrine Neoplasia" for support, advocacy or research.

AMEND

AMEND exists to inform and support anyone affected by multiple endocrine neoplasia disorders and associated endocrine tumors and syndromes, and to encourage and fund research into the conditions through our Annual Research Grant program and Young Investigator Awards. We provide free patient-aimed information resources, including the MEN Passport and AMEND-sponsored children's comics. We also run a variety of free educational events in the UK and USA as well as social and fundraising events. The AMEND website is HONCode certified and the charity runs several social media pages and groups (private and public).

http://www.amend.org.uk

Last Updated: 29 Apr 2014

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Logo
American Multiple Endocrine Neoplasia

The Hageman Foundation supports patient advocacy for a rare disease called Multiple Endocrine Neoplasia. This disease is so elusive that we are the only non-profit in this country which supports the thousands of patients who have this genetic disease. The Hageman Foundation’s mission is to provide education, support and research, using accurate, up-to-date, medical information on Multiple Endocrine Neoplasia (MEN), otherwise referred to as MEN1, MEN2A, MEN2B, and the Whipple Procedure, which is detailed on our website: HagemanFoundation.org. The Hageman Foundation’s current initiative is to provide educational seminars and an educational website, AMENsupport.org, which is designed for the patients, their families, and their advisors who would otherwise not have the means or wherewithal to obtain the information and guidance.

http://www.amensupport.org/

Last Updated: 15 Feb 2013

View Details
Logo
Canadian Multiple Endocrine Neoplasia Society, Inc.

We help people with MEN by referring them to Drs and genetist. We also offer emotional support and literature We can be contacted anytime via email. We do try to find a member close to the newly diagnosed MEN Patient to let them know that "They Are Not Alone"

http://mensociety.ca/

Last Updated: 31 Jan 2013

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General Support Organizations

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General Resources

MEN1 Patient Information Booklet - UK

Detailed booklet on MEN1 written for UK patients to easily understand

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
MEN1 Patient Information Booklet - USA

Detailed but easy to read information on MEN1 written for patients in the USA. Produced in 2013

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
MEN2a Patient Information Booklet - UK

Detailed but easy to read information on MEN2a for patients in the UK

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
MEN2a Patient Information Booklet - USA

Detailed but easy to read information for patients with MEN2a in the USA

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
MEN2b Patient Information Booklet

Detailed but easy to read information on MEN2b

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
Familial MTC Patient Information Booklet

Detailed but easy to read information on familial medullary thyroid cancer

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
Phaeochromocytomas & Paragangliomas Patient Information Booklet

Detailed but easy to read information on phaeochromocytomas & paragangliomas including MEN2 and SDH

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
The Whipple Procedure Patient Information Booklet

Detailed but easy to read information on the surgical procedures known as the Whipple procedure

Uploaded By: AMEND

Updated 29 Apr 2014

Open Doc
 
 
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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Multiple Endocrine Neoplasia" returned 291 free, full-text research articles on human participants. First 3 results:

Breast-cancer predisposition in multiple endocrine neoplasia type 1.
 

Author(s): Koen M A Dreijerink, Pierre Goudet, John R Burgess, Gerlof D Valk,

Journal: N. Engl. J. Med.. 2014 Aug;371(6):583-4.

 

Last Updated: 7 Aug 2014

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Diagnosis and surgical treatment of multiple endocrine neoplasia type 2A.
 

Author(s): Kun-Long Tang, Yi Lin, Li-Ming Li

Journal:

 

This study aims to introduce the diagnosis and surgical treatment of the rare disease multiple endocrine neoplasia type 2A (MEN 2A).

Last Updated: 15 Jan 2014

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Multiple endocrine neoplasia type 2A: case report.
 

Author(s): D L Păun, C Poiană, R Petriş, S Radian, R Dănciulescu Miulescu, G Constantinescu, C Orban

Journal: Chirurgia (Bucur). ;108(6):900-3.

 

Multiple endocrine neoplasia type 2A (MEN 2A) is a complex autosomal dominant inherited syndrome characterized by medullary thyroid carcinoma (MTC), pheochromocytoma and primary parathyroid hyperplasia. In patients with only one or two clinical features, identification of a germline ...

Last Updated: 16 Dec 2013

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Multiple Endocrine Neoplasia" returned 43 free, full-text review articles on human participants. First 3 results:

Biliary tree gastrinomas in multiple endocrine neoplasia type 1 syndrome.
 

Author(s): Francesco Tonelli, Francesco Giudici, Gabriella Nesi, Giacomo Batignani, Maria Luisa Brandi

Journal: World J. Gastroenterol.. 2013 Dec;19(45):8312-20.

 

To describe our patients affected with ectopic biliary tree gastrinoma and review the literature on this topic.

Last Updated: 23 Dec 2013

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Multiple endocrine neoplasia type 1 (MEN1) and type 4 (MEN4).
 

Author(s): Rajesh V Thakker

Journal: Mol. Cell. Endocrinol.. 2014 Apr;386(1-2):2-15.

 

Multiple endocrine neoplasia (MEN) is characterized by the occurrence of tumors involving two or more endocrine glands within a single patient. Four major forms of MEN, which are autosomal dominant disorders, are recognized and referred to as: MEN type 1 (MEN1), due to menin mutations; ...

Last Updated: 3 Mar 2014

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Multiple endocrine neoplasia type 1 with upper gastrointestinal hemorrhage and perforation: a case report and review.
 

Author(s): Ying-Ying Lu, Feng Zhu, Da-Dao Jing, Xie-Ning Wu, Lun-Gen Lu, Gen-Quan Zhou, Xing-Peng Wang

Journal: World J. Gastroenterol.. 2013 Feb;19(8):1322-6.

 

Multiple endocrine neoplasia type 1 (MEN1) is a rare hereditary syndrome known to predispose subjects to endocrine neoplasms in a variety of tissues such as the parathyroid glands, pituitary gland, pancreas and gastrointestinal tract. We herein report a patient with a past history ...

Last Updated: 13 Mar 2013

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Studies of Inherited Diseases of Metabolism
 

Status: Recruiting

Condition Summary: Hypercalcemia; Hyperparathyroidism; Multiple Endocrine Neoplasia

 

Last Updated: 1 Apr 2014

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Diagnosis of Pheochromocytoma
 

Status: Recruiting

Condition Summary: Pheochromocytoma

 

Last Updated: 16 Oct 2014

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Natural History Study of Children and Young Adults With Medullary Thyroid Cancer
 

Status: Recruiting

Condition Summary: Medullary Thyroid Carcer

 

Last Updated: 6 Jun 2014

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