Lymphatic Malformations

Common Name(s)

Lymphatic Malformations

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Lymphatic Malformations" for support, advocacy or research.

Lymphangiomatosis & Gorham's Disease Alliance

Our mission is to improve the care of patients through our patient support programs, and by raising funds to support research that will identify effective treatments and cures. We strive to educate patients and families, and the medical and scientific communities, by providing important, relevant information, and by being the leading advocate for the worldwide member-community.

Last Updated: 5 Nov 2012

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Lymphatic Education & Research Network

Our Mission is to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Last Updated: 14 May 2014

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Lymphatic Malformations" for support, advocacy or research.

Lymphangiomatosis & Gorham's Disease Alliance

Our mission is to improve the care of patients through our patient support programs, and by raising funds to support research that will identify effective treatments and cures. We strive to educate patients and families, and the medical and scientific communities, by providing important, relevant information, and by being the leading advocate for the worldwide member-community.

http://www.lgdalliance.org/

Last Updated: 5 Nov 2012

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Lymphatic Education & Research Network

Our Mission is to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

http://www.lymphaticnetwork.org

Last Updated: 14 May 2014

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General Support Organizations

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General Resources

Lymphatic Malformation Research

The LGDA is closely affiliated with the Lymphatic Malformation Institute (LMI). The LMI receives requests for research projects into lymphatic diseases including lymphangiomatosis and Gorham's disease.

Updated 3 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Lymphatic Malformations" returned 16 free, full-text research articles on human participants. First 3 results:

Treatment of deep-seated facial microcystic lymphatic malformations with intralesional injection of pingyangmycin.
 

Author(s): Hai Wei Wu, Xuan Wang, Jia Wei Zheng, Hai Guang Zhao, Jing Ge, Ling Zhang, Yan An Wang, Li Xin Su, Xin Dong Fan

Journal: Medicine (Baltimore). 2016 Sep;95(37):e4790.

 

Treatment of microcystic lymphatic malformations (LMs) is still a great challenge to physicians in the field of managing vascular anomalies. Several kinds of treatment have been proposed for microcystic LMs, but the responses to these treatment modalities vary considerably among individuals. ...

Last Updated: 16 Sep 2016

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Clinical Efficacy of Herbal Medicine for Pediatric Lymphatic Malformations: A Pilot Study.
 

Author(s): Naoki Hashizume, Minoru Yagi, Hideaki Egami, Kimio Asagiri, Suguru Fukahori, Shinji Ishii, Nobuyuki Saikusa, Motomu Yoshida, Daisuke Masui, Yoshiaki Tanaka

Journal: Pediatr Dermatol. ;33(2):191-5.

 

Lymphatic malformations (LMs) are congenital malformations of the lymphatic system that commonly affect the head and neck region and cause marked cosmetic and functional complications. In this pilot study, we present eight children with LMs treated using an herbal medicine for this indication.

Last Updated: 22 Mar 2016

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Effective palliation of intractable bleeding from Noonan syndrome-associated lymphatic malformations by radiotherapy.
 

Author(s): Brian C Baumann, Kelly M MacArthur, Misha Rosenbach, Jean C Miller, Edgar Ben-Josef

Journal: Acta Derm. Venereol.. 2015 Nov;95(8):1009-10.

 

Last Updated: 4 Nov 2015

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Lymphatic Malformations" returned 0 free, full-text review articles on human participants.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Efficacy of Rapamycin in the Treatment of Cervico-facial Lymphatic Malformations
 

Status: Not yet recruiting

Condition Summary: Lymphatic Malformation; Pediatric

 

Last Updated: 3 Aug 2017

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Sildenafil for the Treatment of Lymphatic Malformations
 

Status: Recruiting

Condition Summary: Lymphatic Malformations; Lymphatic Diseases

 

Last Updated: 9 May 2017

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Lymphatic Anomalies Registry
 

Status: Recruiting

Condition Summary: Lymphatic Malformation; Generalized Lymphatic Anomaly (GLA); Central Conducting Lymphatic Anomaly; CLOVES Syndrome; Gorham-Stout Disease ("Disappearing Bone Disease"); Blue Rubber Bleb Nevus Syndrome; Kaposiform Lymphangiomatosis; Kaposiform Hemangioendothelioma/Tufted Angioma; Klippel-Trenaunay Syndrome; Lymphangiomatosis

 

Last Updated: 26 Jul 2016

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