Juvenile Scleroderma

Common Name(s)

Juvenile Scleroderma

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Juvenile Scleroderma" for support, advocacy or research.

Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

Last Updated: 2 Aug 2013

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Raynaud's & Scleroderma Ireland

• To improve the lives of patients, their families and carers by providing support, advice and information. • To increase the awareness of Raynaud’s and Scleroderma amongst healthcare professionals, Government and Statutory agencies and the general public. • To work in partnership with appropriate healthcare professionals and agencies to promote and co-ordinate the attainment of the objectives of the strategy. • Maintain a working environment that fosters communication, teamwork and diversity among all members of staff- permanent, temporary and voluntary

Last Updated: 6 May 2014

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Juvenile Scleroderma" for support, advocacy or research.

Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

http://www.isabellasaviary.com

Last Updated: 2 Aug 2013

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Raynaud's & Scleroderma Ireland

• To improve the lives of patients, their families and carers by providing support, advice and information. • To increase the awareness of Raynaud’s and Scleroderma amongst healthcare professionals, Government and Statutory agencies and the general public. • To work in partnership with appropriate healthcare professionals and agencies to promote and co-ordinate the attainment of the objectives of the strategy. • Maintain a working environment that fosters communication, teamwork and diversity among all members of staff- permanent, temporary and voluntary

http://www.irishraynauds.com

Last Updated: 6 May 2014

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Juvenile Scleroderma" returned 12 free, full-text research articles on human participants. First 3 results:

Development of consensus treatment plans for juvenile localized scleroderma: a roadmap toward comparative effectiveness studies in juvenile localized scleroderma.
 

Author(s): Suzanne C Li, Kathryn S Torok, Elena Pope, Fatma Dedeoglu, Sandy Hong, Heidi T Jacobe, C Egla Rabinovich, Ronald M Laxer, Gloria C Higgins, Polly J Ferguson, Andrew Lasky, Kevin Baszis, Mara Becker, Sarah Campillo, Victoria Cartwright, Michael Cidon, Christi J Inman, Rita Jerath, Kathleen M O'Neil, Sheetal Vora, Andrew Zeft, Carol A Wallace, Norman T Ilowite, Robert C Fuhlbrigge,

Journal: Arthritis Care Res (Hoboken). 2012 Aug;64(8):1175-85.

 

Juvenile localized scleroderma (LS) is a chronic inflammatory skin disorder associated with substantial morbidity and disability. Although a wide range of therapeutic strategies has been reported in the literature, a lack of agreement on treatment specifics and accepted methods for ...

Last Updated: 31 Jul 2012

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Access to care for children and young people diagnosed with localized scleroderma or juvenile SSc in the UK.
 

Author(s): Daniel P Hawley, Eileen M Baildam, Tania S Amin, Mary K Cruikshank, Joyce E Davidson, Jennifer Dixon, Neil S Martin, Victoria Ohlsson, Clarissa Pilkington, Satyapal Rangaraj, Philip Riley, Chitra Sundaramoorthy, Jo Walsh, Helen E Foster

Journal: Rheumatology (Oxford). 2012 Jul;51(7):1235-9.

 

To describe pathways of care and referral to paediatric rheumatology from onset of first symptom (noticed by the patient or their family) to diagnosis for children and young people diagnosed with localized scleroderma (LS) or juvenile SSc (jSSc).

Last Updated: 22 Jun 2012

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Juvenile scleroderma: experience in one institution.
 

Author(s): Chia-Yi Lo, Shyh-Dar Shyur, Szu-Hung Chu, Li-Hsin Huang, Yu-Hsuan Kao, Wei-Te Lei, Chieh-Han Cheng, Kuo-Hsi Lee, Chen-Kuan Chen, Ling-Chun Liu

Journal: Asian Pac. J. Allergy Immunol.. 2010 Dec;28(4):279-86.

 

Scleroderma is a chronic connective tissue disease characterized by hardened or scaly skin and widespread abnormalities of the viscera, which is rare in the pediatric age group.

Last Updated: 21 Feb 2011

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Juvenile Scleroderma" returned 1 free, full-text review articles on human participants. First 3 results:

[Juvenile scleroderma].
 

Author(s): Patrícia Andrade de Mâcedo, Samuel Katsuyuki Shinjo, Cláudia Goldenstein-Schainberg

Journal: Acta Reumatol Port. ;33(3):289-97.

 

Juvenile scleroderma is a rare childhood condition characterized by fibrosis of the skin and internal organs. Clinical manifestations of childhood scleroderma are different from adult disease and early recognition, correct classification and treatment can improve long-term outcome. ...

Last Updated: 10 Oct 2008

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

The CARRA Registry
 

Status: Recruiting

Condition Summary: Juvenile Idiopathic Arthritis; Systemic Lupus Erythematosus; Mixed Connective Tissue Disease; Juvenile Ankylosing Spondylitis; Juvenile Dermatomyositis; Localized Scleroderma; Systemic Sclerosis; Vasculitis; Sarcoid; Fibromyalgia, Primary; Auto-inflammatory Disease; Idiopathic Uveitis Idiopathic

 

Last Updated: 17 Mar 2014

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