Juvenile Scleroderma
Common Name(s)
Juvenile Scleroderma
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Juvenile Scleroderma" for support, advocacy or research.
Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.
• To improve the lives of patients, their families and carers by providing support, advice and information. • To increase the awareness of Raynaud’s and Scleroderma amongst healthcare professionals, Government and Statutory agencies and the general public. • To work in partnership with appropriate healthcare professionals and agencies to promote and co-ordinate the attainment of the objectives of the strategy. • Maintain a working environment that fosters communication, teamwork and diversity among all members of staff- permanent, temporary and voluntary
How do you compare to others with this condition?
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Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Juvenile Scleroderma" for support, advocacy or research.
Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.
http://www.isabellasaviary.com • To improve the lives of patients, their families and carers by providing support, advice and information. • To increase the awareness of Raynaud’s and Scleroderma amongst healthcare professionals, Government and Statutory agencies and the general public. • To work in partnership with appropriate healthcare professionals and agencies to promote and co-ordinate the attainment of the objectives of the strategy. • Maintain a working environment that fosters communication, teamwork and diversity among all members of staff- permanent, temporary and voluntary
http://www.irishraynauds.comRecommended Apps
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Finding the right clinical trial for Juvenile Scleroderma can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.
Scientific Literature
Articles from the PubMed Database
Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Juvenile Scleroderma" returned 10 free, full-text research articles on human participants.
First 3 results:
Journal: Rev Chil Pediatr. ;87(4):279-83.
Morphea or juvenile localised scleroderma (JLS) is an autoimmune, inflammatory, chronic, slowly progressive connective tissue disease of unknown cause that preferably affects skin and underlying tissues.
Journal:
Juvenile scleroderma (JS) represents a rarely seen group of connective tissue diseases with multiple organ involvement. Cardiac involvement in JSS is well known and, although rare in children, it may be an important cause of mortality and morbidity. Therefore, an early determination ...
Journal: Br. J. Dermatol.. 2016 Jan;174(1):228-30.
To view other free, full-text articles on human participants, please click on the link below.
Reviews from the PubMed Database
Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Juvenile Scleroderma" returned 1 free, full-text review articles on human participants.
First 3 results:
Journal: Acta Reumatol Port. ;33(3):289-97.
Juvenile scleroderma is a rare childhood condition characterized by fibrosis of the skin and internal organs. Clinical manifestations of childhood scleroderma are different from adult disease and early recognition, correct classification and treatment can improve long-term outcome. ...
To view other free, full-text review articles on human participants, please click on the link below.
Symptoms, Diagnosis, and Treatment
https://ghr.nlm.nih.gov/gene/XYLT2
https://ghr.nlm.nih.gov/condition/juvenile-polyposis-syndrome
https://ghr.nlm.nih.gov/gene/STAT4
https://ghr.nlm.nih.gov/gene/IRF5
https://ghr.nlm.nih.gov/condition/juvenile-idiopathic-arthritis
https://ghr.nlm.nih.gov/condition/x-linked-juvenile-retinoschisis
https://ghr.nlm.nih.gov/condition/juvenile-myoclonic-epilepsy
https://ghr.nlm.nih.gov/condition/juvenile-primary-lateral-sclerosis
https://ghr.nlm.nih.gov/condition/juvenile-primary-osteoporosis
https://ghr.nlm.nih.gov/condition/juvenile-paget-disease
https://ghr.nlm.nih.gov/condition/juvenile-hyaline-fibromatosis
https://ghr.nlm.nih.gov/gene/EFHC1
https://ghr.nlm.nih.gov/condition/ren-related-kidney-disease
https://ghr.nlm.nih.gov/gene/RS1
https://ghr.nlm.nih.gov/gene/NPHP1
https://ghr.nlm.nih.gov/gene/SMAD4
https://ghr.nlm.nih.gov/condition/multiple-sulfatase-deficiency
https://ghr.nlm.nih.gov/condition/cln3-disease
https://ghr.nlm.nih.gov/gene/LEMD2
There are currently no related results available in GeneReviews.
There are currently no related results available in Genetic Testing Registry.
Clinical Trial Information This information is provided by ClinicalTrials.gov
There are currently no open clinical trials for this condition.
Finding the right clinical trial for Juvenile Scleroderma can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.