Pachyonychia congenita, type 1
Common Name(s)
Pachyonychia congenita, type 1
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Pachyonychia congenita, type 1" for support, advocacy or research.
Our mission is to develop and deliver effective treatments for Pachyonychia Congenita patients worldwide. Activities include research grants, educational outreach programs, Int'l PC Consortium annual scientific symposium, patient support meetings held annually, an IRB-approved research registry, free genetic testing and webinars and other support services for patients, families,
How do you compare to others with this condition?
Privately answer questions about your health. Let resources, you select, come to you.
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Pachyonychia congenita, type 1" for support, advocacy or research.
Our mission is to develop and deliver effective treatments for Pachyonychia Congenita patients worldwide. Activities include research grants, educational outreach programs, Int'l PC Consortium annual scientific symposium, patient support meetings held annually, an IRB-approved research registry, free genetic testing and webinars and other support services for patients, families,
http://www.pachyonychia.orgRecommended Apps
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Finding the right clinical trial for Pachyonychia congenita, type 1 can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.
Scientific Literature
Articles from the PubMed Database
Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Pachyonychia congenita, type 1" returned 0 free, full-text research articles on human participants.
No free, full-text research articles on human participants are available at this time. Please click this link to visit the PubMed website for results on "Pachyonychia congenita, type 1".
Reviews from the PubMed Database
Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Pachyonychia congenita, type 1" returned 0 free, full-text review articles on human participants.
No free, full-text review articles on human participants are available at this time. Please click this link to visit the PubMed website for results on "Pachyonychia congenita, type 1".
Symptoms, Diagnosis, and Treatment
Clinical Trial Information This information is provided by ClinicalTrials.gov
There are currently no open clinical trials for this condition.
Finding the right clinical trial for Pachyonychia congenita, type 1 can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.