Hidradenitis suppurativa

Common Name(s)

Hidradenitis suppurativa, Hidradenitis suppurativa familial

Hidradenitis suppurativa (HS) is a rare condition that causes abscesses and cysts to form on a person’s skin. The most commonly affected areas are the underarms, under the breasts, inner thighs, groin, and buttocks. Though this disease is not contagious, it can be extremely painful for that affected person. Cysts that form from HS can go through periods of inflammation, swelling to the size of golf and even tennis balls. In certain cases, a small incision can be made to drain the cyst. In more severe cases sinus tracts can form between cysts, which can lead to open wounds that take a long time to heal. Certain factors such as hot and humid weather, as well as wearing clothes that do not breathe and rub the cysts, can cause inflammation.

HS is not a rare condition. It is estimated that it affects between 1/100 to 1/1000 in Western populations. Females are more likely to be affected, with a female to male ratio of 4 or 5 to 1. Symptoms of HS normally begin after puberty but rarely after menopause with the mean age of onset being 20-23 years old. The specific cause of HS is unknown, although it probably results from a combination of genetic and environmental factors. Talk to your doctor to decide on the best treatment if you or a family member has been diagnosed with HS. Support groups are also a good source of information and a way to connect with others affected with HS.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

Last Updated: 10 May 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

http://www.klinikum-dessau.de/klinikenundinstitute/hautklinikundimmuno ...

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

http://www.hs-foundation.org/

Last Updated: 10 May 2013

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hidradenitis suppurativa" returned 80 free, full-text research articles on human participants. First 3 results:

PsAPASH: a new syndrome associated with hidradenitis suppurativa with response to tumor necrosis factor inhibition.
 

Author(s): Rosita Saraceno, Graziella Babino, Andrea Chiricozzi, Arianna Zangrilli, Sergio Chimenti

Journal: J. Am. Acad. Dermatol.. 2015 Jan;72(1):e42-4.

 

Last Updated: 16 Dec 2014

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Hidradenitis suppurativa after renal transplantation: complete remission after switching from oral cyclosporine to oral tacrolimus.
 

Author(s): Emilie Ducroux, Maria Andrea Ocampo, Jean Kanitakis, Emmanuel Morelon, Denis Jullien, Michel Faure, Sylvie Euvrard

Journal: J. Am. Acad. Dermatol.. 2014 Nov;71(5):e210-1.

 

Last Updated: 2 Dec 2014

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Tufted hair folliculitis associated with Melkersson-Rosenthal syndrome and hidradenitis suppurativa.
 

Author(s): Sule Güngör, Tülin Yüksel, Ilteris Topal

Journal: Indian J Dermatol Venereol Leprol. ;80(5):484.

 

Last Updated: 9 Sep 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hidradenitis suppurativa" returned 16 free, full-text review articles on human participants. First 3 results:

Hidradenitis suppurativa.
 

Author(s): Lynette J Margesson, F William Danby

Journal: Best Pract Res Clin Obstet Gynaecol. 2014 Oct;28(7):1013-27.

 

Hidradenitis suppurativa is a chronic relapsing disorder of the folliculopilosebaceous units (FPSUs). Its negative impact on quality of life is extreme, mainly due to the lack of early recognition, accurate diagnosis, and appropriate management. The support structure of the FPSUs ...

Last Updated: 2 Dec 2014

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Topical treatments of skin pain: a general review with a focus on hidradenitis suppurativa with topical agents.
 

Author(s): Noah Scheinfeld

Journal:

 

Hidradenitis Supprurativa (HS) is a painful chronic follicular disease. Few papers have addressed pain control for this debilitating condition. Possible topical agents include tricyclic antidepressants, opioids, anticonvulsants, NSAIDs, NMDA receptor antagonists, local anesthetics ...

Last Updated: 22 Jul 2014

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Dissecting cellulitis (Perifolliculitis Capitis Abscedens et Suffodiens): a comprehensive review focusing on new treatments and findings of the last decade with commentary comparing the therapies and causes of dissecting cellulitis to hidradenitis suppurativa.
 

Author(s): Noah Scheinfeld

Journal:

 

Dissecting cellulitis (DC) also referred to as to as perifolliculitis capitis abscedens et suffodiens (Hoffman) manifests with perifollicular pustules, nodules, abscesses and sinuses that evolve into scarring alopecia. In the U.S., it predominantly occurs in African American men between ...

Last Updated: 23 May 2014

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Last Updated: 13 Jun 2014

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Efficacy, Safety, and Pharmacokinetics Study of CJM112 in Hidradenitis Suppurativa Patients
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa (Acne Inversa)

 

Last Updated: 6 Aug 2015

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