Hidradenitis suppurativa

Common Name(s)

Hidradenitis suppurativa, Hidradenitis suppurativa familial

Hidradenitis suppurativa (HS) is a rare condition that causes abscesses and cysts to form on a person’s skin. The most commonly affected areas are the underarms, under the breasts, inner thighs, groin, and buttocks. Though this disease is not contagious, it can be extremely painful for that affected person. Cysts that form from HS can go through periods of inflammation, swelling to the size of golf and even tennis balls. In certain cases, a small incision can be made to drain the cyst. In more severe cases sinus tracts can form between cysts, which can lead to open wounds that take a long time to heal. Certain factors such as hot and humid weather, as well as wearing clothes that do not breathe and rub the cysts, can cause inflammation.

HS is not a rare condition. It is estimated that it affects between 1/100 to 1/1000 in Western populations. Females are more likely to be affected, with a female to male ratio of 4 or 5 to 1. Symptoms of HS normally begin after puberty but rarely after menopause with the mean age of onset being 20-23 years old. The specific cause of HS is unknown, although it probably results from a combination of genetic and environmental factors. Talk to your doctor to decide on the best treatment if you or a family member has been diagnosed with HS. Support groups are also a good source of information and a way to connect with others affected with HS.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

Last Updated: 10 May 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

http://www.klinikum-dessau.de/klinikenundinstitute/hautklinikundimmuno ...

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

http://www.hs-foundation.org/

Last Updated: 10 May 2013

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hidradenitis suppurativa" returned 164 free, full-text research articles on human participants. First 3 results:

Squamous cell carcinoma of the perineum masquerading as necrotizing hidradenitis suppurativa.
 

Author(s): Christina L Harview, Allison K Truong, Scott D Worswick, George P Sarantopoulos, Jennifer L Hsiao

Journal:

 

Many cases of superinfected hidradenitis suppurativa (HS) involve multiple species of bacteria, but gas-producing infections are rare and can complicate the clinical picture. Additionally, recognizing squamous cell carcinoma (SCC) as a complication of longstanding HS is imperative. ...

Last Updated: 31 Dec 1969

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Hidradenitis Suppurativa, Metabolic Syndrome, and Demodex spp. Infestation.
 

Author(s): Emine Ünal, Ulviye Güvendi Akçınar, Ayşe Arduç

Journal: Turkiye Parazitol Derg. 2018 Jun;42(2):171-174.

 

Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease. This type of dermatosis with underlying chronic inflammation significantly affects the quality of life and may be accompanied by many comorbidities. In this case, Demodex spp. was associated with treatment-resistant ...

Last Updated: 31 Dec 1969

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Hidradenitis suppurativa associated with systemic lupus erythematosus: A case report.
 

Author(s): Chen Ben David, Nicola L Bragazzi, Abdulla Watad, Kassem Sharif, Aaron Whitby, Howard Amital, Mohammad Adawi

Journal: Medicine (Baltimore). 2018 Mar;97(12):e0186.

 

Hidradenitis suppurativa (HS) is a chronic inflammatory condition characterized by recurrent swollen, deep, and painful abscesses. Several autoimmune conditions have been shown to be associated with HS including inflammatory bowel disease and spondyloarthropathies.

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hidradenitis suppurativa" returned 30 free, full-text review articles on human participants. First 3 results:

Cutaneous squamous cell carcinoma complicating hidradenitis suppurativa: a review of the prevalence, pathogenesis, and treatment of this dreaded complication.
 

Author(s): Stephanie Chapman, Daniel Delgadillo, Cara Barber, Amor Khachemoune

Journal: Acta Dermatovenerol Alp Pannonica Adriat. 2018 03;27(1):25-28.

 

Hidradenitis suppurativa (HS) is a chronic and debilitating skin disorder characterized by the formation of painful abscesses, draining sinus tracts, and scarring, predominantly in skin folds such as the axillae and the perineum. The exact prevalence of HS is unknown because the disease ...

Last Updated: 31 Dec 1969

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Hidradenitis Suppurativa: Disease Burden and Etiology in Skin of Color.
 

Author(s): Dylan E Lee, Ashley K Clark, Vivian Y Shi

Journal: Dermatology (Basel). 2017 ;233(6):456-461.

 

Hidradenitis suppurativa (HS) is a chronic, debilitating skin disease. Although most studies on HS are conducted in largely Caucasian populations, evidence demonstrates a higher prevalence in patients with skin of color, including African and Hispanic populations. These racial subgroups ...

Last Updated: 31 Dec 1969

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Pain, Psychological Comorbidities, Disability, and Impaired Quality of Life in Hidradenitis Suppurativa [corrected].
 

Author(s): Zarine S Patel, Lauren K Hoffman, Dawn C Buse, Amy S Grinberg, Ladan Afifi, Steven R Cohen, Michelle A Lowes, Elizabeth K Seng

Journal:

 

Hidradenitis suppurativa (HS) is a chronic, painful dermatologic disease characterized by recurrent inflammatory nodules and abscesses of intertriginous areas such as the axilla and groin. People with HS suffer from greater pain and associated psychological comorbidities, including ...

Last Updated: 31 Dec 1969

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Clinical Trial Information This information is provided by ClinicalTrials.gov

A Study of Bermekimab in Patients With Hidradenitis Suppurativa
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 29 Aug 2018

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A National Registry For Patients With Hidradenitis Suppurativa
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 10 Apr 2018

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Treatment of Hidradenitis Suppurativa With Eth 755nm Alexandrite Laser
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 4 Oct 2018

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