Hemangioblastoma

Common Name(s)

Hemangioblastoma

A hemangioblastoma is a benign, highly vascular tumor that can occur in the brain, spinal cord, and retina (the light-sensitive tissue that lines the back of the eye). This tumor accounts for about 2% of brain tumors. As it enlarges, it presses on the brain and can cause neurological symptoms, such as headaches, weakness, sensory loss, balance and coordination problems, and/or hydrocephalus (a buildup of spinal fluid in the brain). Most hemangioblastomas occur sporadically. However, some people develop hemangioblastomas as part of a genetic syndrome called von Hippel-Lindau syndrome. These people usually develop multiple tumors within the brain and spinal cord over their lifetime.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hemangioblastoma" for support, advocacy or research.

VHL Alliance

VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

Last Updated: 5 Jan 2015

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hemangioblastoma" for support, advocacy or research.

VHL Alliance

VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

http://www.vhl.org

Last Updated: 5 Jan 2015

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hemangioblastoma" returned 67 free, full-text research articles on human participants. First 3 results:

Intramedullary hemorrhage caused by spinal cord hemangioblastoma: a case report.
 

Author(s): Masao Koda, Chikato Mannoji, Takashi Itabashi, Tsuneji Kita, Masazumi Murakami, Masashi Yamazaki, Masaaki Aramomi, Osamu Ikeda, Takeo Furuya

Journal:

 

Hemorrhage caused by spinal cord hemangioblastoma is rare, usually presenting as a subarachnoid hemorrhage. Intramedullary hemorrhage is an extremely rare manifestation of spinal cord hemangioblastoma.

Last Updated: 9 Dec 2014

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Giant solid hemangioblastoma of the cerebellopontine angle: a technically challenging case.
 

Author(s): Bijesh Ravindran Nair, Vivek Joseph, Geeta Chacko, Shyamkumar Nidugala Keshava

Journal: Neurol India. ;62(2):228-9.

 

Last Updated: 14 May 2014

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Symptomatic anterior cerebral artery vasospasm after brainstem hemangioblastoma resection. A case report.
 

Author(s): Andrea Prontera, Annette Puzzolante, Paolo Carpeggiani, Giacomo Pavesi

Journal: Neuroradiol J. 2014 Apr;27(2):186-90.

 

Diffuse cerebral vasospasm is a rare complication after brain tumour resection as opposed to that following an aneurysmal subarachnoid haemorrhage. Sellar tumours are among the most common pathologies and locations associated with this complication. Removal of posterior cranial fossa ...

Last Updated: 22 Apr 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hemangioblastoma" returned 12 free, full-text review articles on human participants. First 3 results:

Hemangioblastoma of pelvic cavity: report of a case and review of literature.
 

Author(s): Huijuan Shi, Hui Li, Tiantian Zhen, Fenfen Zhang, Anjia Han

Journal:

 

Hemangioblastoma of soft tissue is a very rare tumor of uncertain histological type. Herein, we reported a 51-year-old woman was found to have a solid and cystic mass measuring 31√ó30 mm in the right adnexa area on a computed tomography scan. The tumor showed the typical histology ...

Last Updated: 17 Nov 2014

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Multifocal central nervous system hemangioblastoma: a case report and review of the literature.
 

Author(s): L Z Chu, Z Z Guan, J Liu, H Yang, X L Qi, M G Dong, Y M Chen, Y N Xiang, Y Li

Journal:

 

An effective therapy for multifocal central nervous system hemangioblastoma (CNS HB) is needed. Here, we report a case of multifocal CNS HB. A 43-year-old man was diagnosed with CNS HB by enhanced computed tomography and magnetic resonance imaging. Six solid tumors and one cystic ...

Last Updated: 10 Oct 2014

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Sporadic hemangioblastoma of the retroperitoneum.
 

Author(s): Yong Huang, Xiang-Chun Han, Guo-Shi Lv

Journal:

 

Hemangioblastoma is a rare neoplasm occurred in soft tissue. Herein, we present an intriguing case of sporadic hemangioblastoma in the retroperitoneum occurring in a 59-year-old male. The tumor was characterized by an alternation of cellular and paucicellular areas surrounded by a ...

Last Updated: 12 May 2014

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Psychosocial Consequences of the Screening of Von Hippel Lindau Diseases for Patients Operated for a hémangioblastoma of Nervous Centrasl System
 

Status: Recruiting

Condition Summary: Hemangioblastoma (HB) of the Central Nervous System (CNS)

 

Last Updated: 20 Apr 2015

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