Endometriosis

Common Name(s)

Endometriosis

Endometriosis is a disorder in which the tissue that lines the uterus grows somewhere else, such as on the ovaries, behind the uterus, or on the bowels or bladder. During menstruation, the tissue breaks down and bleeds with the menstrual cycle, but the displaced tissue cannot exit the body. This can cause cysts to form, eventually leading to the development of scar tissue and adhesions. This trapped tissue can cause extreme pain, very heavy periods, and infertility, though some women may present no symptoms at all. The cause of endometriosis is not known.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Endometriosis" for support, advocacy or research.

Endometriosis Association

The Endometriosis Association (EA) is a 501(c)(3) nonprofit international organization that provides support, information and advocacy for women with endometriosis, educates the public and the medical community about the disease. The Association supports research related to endometriosis, and works to increase scientific knowledge about the disease.

Last Updated: 29 Apr 2014

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Endometriosis Foundation of America

The Endometriosis Foundation of America is a 501(c)3 organization that focuses on fighting the devastating effects of endometriosis - a debilitating disease affecting 176 million women and adolescent girls worldwide - 1 in 10 women of childbearing age in the United States. The EFA strives to increase disease recognition, provide advocacy, facilitate expert surgical training and fund landmark endometriosis research.

Last Updated: 12 Nov 2014

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HealthyWomen

HealthyWomen (HW) is the nation's leading independent health information source for women. Our core mission is to educate, inform and empower women to make smart health choices for themselves and their families. For more than 20 years, millions of women have been coming to HW for answers to their most pressing and personal health care questions. Through our wide array of online and print publications, HW provides health information that is original, objective, reviewed by medical experts and reflective of the advances in evidence-based health research.

Last Updated: 16 Mar 2015

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Endometriosis" for support, advocacy or research.

Endometriosis Association

The Endometriosis Association (EA) is a 501(c)(3) nonprofit international organization that provides support, information and advocacy for women with endometriosis, educates the public and the medical community about the disease. The Association supports research related to endometriosis, and works to increase scientific knowledge about the disease.

http://www.EndometriosisAssn.org

Last Updated: 29 Apr 2014

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Endometriosis Foundation of America

The Endometriosis Foundation of America is a 501(c)3 organization that focuses on fighting the devastating effects of endometriosis - a debilitating disease affecting 176 million women and adolescent girls worldwide - 1 in 10 women of childbearing age in the United States. The EFA strives to increase disease recognition, provide advocacy, facilitate expert surgical training and fund landmark endometriosis research.

http://www.endofound.org

Last Updated: 12 Nov 2014

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HealthyWomen

HealthyWomen (HW) is the nation's leading independent health information source for women. Our core mission is to educate, inform and empower women to make smart health choices for themselves and their families. For more than 20 years, millions of women have been coming to HW for answers to their most pressing and personal health care questions. Through our wide array of online and print publications, HW provides health information that is original, objective, reviewed by medical experts and reflective of the advances in evidence-based health research.

http://www.healthywomen.org

Last Updated: 16 Mar 2015

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General Support Organizations

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General Resources

Educational Information About Endometriosis

Free brochures in 30 languages; books, CDs, and DVDs available for purchase.

Updated 29 Apr 2014

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Endometriosis" returned 1232 free, full-text research articles on human participants. First 3 results:

Identification of differentially methylated genes in the malignant transformation of ovarian endometriosis.
 

Author(s): Fang Ren, Dan-Bo Wang, Tong Li, Ying-Han Chen, Yan Li

Journal:

 

Key roles for epigenetic mechanisms in tumorigenesis are well accepted, while the relationship between gene methylation and malignant transformation of ovarian endometriosis (EMS) was seldom reported. In this study, we aimed to screen for aberrantly methylated genes associated with ...

Last Updated: 10 Oct 2014

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Decorin induced by progesterone plays a crucial role in suppressing endometriosis.
 

Author(s): Yoshihiro Joshua Ono, Yoshito Terai, Akiko Tanabe, Atsushi Hayashi, Masami Hayashi, Yoshiki Yamashita, Satoru Kyo, Masahide Ohmichi

Journal: J. Endocrinol.. 2014 Nov;223(2):203-16.

 

Dienogest, a synthetic progestin, has been shown to be effective against endometriosis, although it is still unclear as to how it affects the ectopic endometrial cells. Decorin has been shown to be a powerful endogenous tumor repressor acting in a paracrine fashion to limit tumor ...

Last Updated: 16 Oct 2014

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Umbilical endometriosis elucidates cause of recurrent pneumothorax.
 

Author(s): Christen Mowad, Cassondra Andreychik, Timothy Murphy

Journal: J. Am. Acad. Dermatol.. 2014 Sep;71(3):e79-80.

 

Last Updated: 16 Aug 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Endometriosis" returned 209 free, full-text review articles on human participants. First 3 results:

World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project: II. Clinical and covariate phenotype data collection in endometriosis research.
 

Author(s): Allison F Vitonis, Katy Vincent, Nilufer Rahmioglu, Amelie Fassbender, Germaine M Buck Louis, Lone Hummelshoj, Linda C Giudice, Pamela Stratton, G David Adamson, Christian M Becker, Krina T Zondervan, Stacey A Missmer,

Journal: Fertil. Steril.. 2014 Nov;102(5):1223-32.

 

To harmonize the collection of nonsurgical clinical and epidemiologic data relevant to endometriosis research, allowing large-scale collaboration.

Last Updated: 2 Dec 2014

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World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project: III. Fluid biospecimen collection, processing, and storage in endometriosis research.
 

Author(s): Nilufer Rahmioglu, Amelie Fassbender, Allison F Vitonis, Shelley S Tworoger, Lone Hummelshoj, Thomas M D'Hooghe, G David Adamson, Linda C Giudice, Christian M Becker, Krina T Zondervan, Stacey A Missmer,

Journal: Fertil. Steril.. 2014 Nov;102(5):1233-43.

 

To harmonize standard operating procedures (SOPs) and standardize the recording of associated data for collection, processing, and storage of fluid biospecimens relevant to endometriosis.

Last Updated: 2 Dec 2014

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World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project: IV. Tissue collection, processing, and storage in endometriosis research.
 

Author(s): Amelie Fassbender, Nilufer Rahmioglu, Allison F Vitonis, Paola ViganĂ², Linda C Giudice, Thomas M D'Hooghe, Lone Hummelshoj, G David Adamson, Christian M Becker, Stacey A Missmer, Krina T Zondervan,

Journal: Fertil. Steril.. 2014 Nov;102(5):1244-53.

 

To harmonize standard operating procedures (SOPs) and standardize the recording of associated data for collection, processing, and storage of human tissues relevant to endometriosis.

Last Updated: 2 Dec 2014

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

MEdical Versus SUrgical Treatments of Rectal Endometriosis
 

Status: Recruiting

Condition Summary: Endometriosis

 

Last Updated: 4 Dec 2014

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Infertility and Endometriosis Cohort
 

Status: Recruiting

Condition Summary: Endometriosis; Infertility

 

Last Updated: 8 Jan 2015

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Telomeres Evaluation in Endometriosis
 

Status: Not yet recruiting

Condition Summary: Endometriosis

 

Last Updated: 7 Apr 2013

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