Diaphragmatic Hernia, Congenital

Common Name(s)

Diaphragmatic Hernia, Congenital

Congenital diaphragmatic hernia (CDH) is a condition where a baby is born with a hole in his or her diaphragm. The diaphragm is the muscle that separates the chest from the stomach, and if it does not develop the right way it can be dangerous. When a baby has a hole in their diaphragm, organs like the stomach, liver or intestines can move into the chest where they do not belong. About 1 in 2,500 babies is diagnosed with congenital diaphragmatic hernias each year either during an ultrasound or at birth. If a baby is diagnosed with CDH during an ultrasound, doctors will monitor the pregnancy carefully. Most babies with congenital diaphragmatic hernias can have surgery soon after they are born to repair the diaphragm and return internal organs to their proper place. Sometimes babies may need a ventilator to help them breathe before they are strong enough to have surgery. Outcomes for babies with CDH vary, and depend on how big the hole in the diaphragm is. Once a baby has surgery for CDH he or she will need to be monitored for the rest of its life, but many babies with CDH develop normally.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Diaphragmatic Hernia, Congenital" for support, advocacy or research.

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Breath of Hope

Breath of Hope exists to raise awareness of congenital diaphragmatic hernia by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.

Last Updated: 15 Feb 2013

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Breath of Hope, Incorporated

Breath of Hope exists to raise awareness of congenital diaphragmatic hernia by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.

Last Updated: 19 Aug 2013

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Real Hope for CDH

SUPPORT & REAL HOPE FOR PARENTS FACING CONGENITAL DIAPHRAGMATIC HERNIA- RESULTS OF 92% SURVIVAL BABIES BORN AT SHANDS HOSPITAL IN GAINESVILLE

Last Updated: 28 Feb 2013

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Diaphragmatic Hernia, Congenital" for support, advocacy or research.

Logo
Breath of Hope

Breath of Hope exists to raise awareness of congenital diaphragmatic hernia by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.

http://www.breathofhopeinc.com

Last Updated: 15 Feb 2013

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Breath of Hope, Incorporated

Breath of Hope exists to raise awareness of congenital diaphragmatic hernia by working with parents, family members, and medical professionals to educate and support all who are affected by or want to learn more about CDH.

http://www.breathofhopeinc.com

Last Updated: 19 Aug 2013

View Details
Logo
Real Hope for CDH

SUPPORT & REAL HOPE FOR PARENTS FACING CONGENITAL DIAPHRAGMATIC HERNIA- RESULTS OF 92% SURVIVAL BABIES BORN AT SHANDS HOSPITAL IN GAINESVILLE

http://www.realhopeforcdh.com/

Last Updated: 28 Feb 2013

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Diaphragmatic Hernia, Congenital" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Diaphragmatic Hernia, Congenital" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Fetal Endotracheal Occlusion (FETO) in Severe Congenital Diaphragmatic Hernia
 

Status: Recruiting

Condition Summary: Congenital Diaphragmatic Hernia

 

Last Updated: 22 Aug 2014

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Early FETO for Severe Congenital Diaphragmatic Hernia
 

Status: Not yet recruiting

Condition Summary: Congenital Diaphragmatic Hernia

 

Last Updated: 16 Dec 2013

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