Developmental Disabilities

Common Name(s)

Developmental Disabilities

Developmental disabilities are a group of conditions due to an impairment or delay in a developmental area such as physical, learning, language or behavioral. A disability such as this typically begins early during childhood development and lasts throughout the person's lifetime. Some developmental disabilities are purely physical such as blindness. Others are a combination of physical and intellectual disabilities. Developmental disabilities often impact day-to-day functioning, though to widely varying degrees. Often children with developmental disabilities will be slower to reach certain milestones. Children reach milestones such as crawling, walking and talking at different paces, but there are milestone guides to help determine if a child is on the right track. Many developmental disabilities begin even before birth, some may occur afterwards as a result of injury, infection or other trauma. Most are thought to be caused by a combination of both genetic and environmental factors. Often times, the reason for the developmental disability is unknown. Risk factors during pregnancy include tobacco and alcohol use, toxin, chemical or drug exposures, or infections. Untreated jaundice after birth, low birth weight and premature birth may also play a role. Some examples of developmental disabilities include fetal alcohol syndrome (maternal alcohol use during pregnancy) and genetic conditions such as Fragile X and Down syndrome. It is estimated that 1 in 6 children in the United States has a form of developmental disability. Early diagnosis and intervention can have a significant impact on a child's chance to learn new skills. If a child is suspected to have a delay, a developmental screening assessment should be done. Don't hesitate to have you child screened if you feel there could be a delay. There are many options for help in terms of for schooling, work and social support. Support groups are a good source of information, networking and support.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Developmental Disabilities" for support, advocacy or research.

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Any Baby Can, Inc.

Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

Last Updated: 1 Mar 2013

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Arc of the United States

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Last Updated: 1 Nov 2012

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Arc Wisconsin Disability Association, Inc.

The Arc-Wisconsin strives to be a major force in advocating and promoting self-determined quality of life opportunities for people with developmental and related disabilities and their families. This will be accomplished through: • Public policy and program design initiatives • Fiscal and program support to local chapters of the Arc • Substantially expanded resources, which are used efficiently and effectively in carrying out statewide and local programs • Advocacy for people with disabilities living in the community

Last Updated: 15 Apr 2013

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Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

Last Updated: 15 Apr 2014

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Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

Last Updated: 15 Apr 2013

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The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

Last Updated: 11 Apr 2013

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The Focus Foundation

The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential.

Last Updated: 19 Feb 2013

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VOR-Speaking up for people with intellectual & developmental disabilities

VOR is a national organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

Last Updated: 29 Apr 2014

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Developmental Disabilities" for support, advocacy or research.

Logo
Any Baby Can, Inc.

Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

http://anybabycansa.org

Last Updated: 1 Mar 2013

View Details
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Arc of the United States

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

http://www.thearc.org

Last Updated: 1 Nov 2012

View Details
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Arc Wisconsin Disability Association, Inc.

The Arc-Wisconsin strives to be a major force in advocating and promoting self-determined quality of life opportunities for people with developmental and related disabilities and their families. This will be accomplished through: • Public policy and program design initiatives • Fiscal and program support to local chapters of the Arc • Substantially expanded resources, which are used efficiently and effectively in carrying out statewide and local programs • Advocacy for people with disabilities living in the community

http://www.arc-wisconsin.org

Last Updated: 15 Apr 2013

View Details
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Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

http://www.mofamilytofamily.org

Last Updated: 15 Apr 2014

View Details
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Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

http://www.oklahomafamilynetwork.org

Last Updated: 15 Apr 2013

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The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

http://www.arceci.org

Last Updated: 11 Apr 2013

View Details
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The Focus Foundation

The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential.

http://www.thefocusfoundation.org/FF/index.php

Last Updated: 19 Feb 2013

View Details
VOR-Speaking up for people with intellectual & developmental disabilities

VOR is a national organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

http://www.vor.net

Last Updated: 29 Apr 2014

View Details

 

General Support Organizations

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General Resources

Toolkit for Families

Advocacy resources for individuals with intellectual and developmental disabilities, including autism, and their families, guardians and advocates. Resources relate to residential choice, federal laws, cost comparisons, quality of care and more.

Updated 29 Apr 2014

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Toolkit for Legislators, Policymakers, and Officials

Advocacy resources for legislators and policymakers re: to developmental disabilities, including autism, Resources relate to residential choice, federal laws, cost comparisons, quality of care and more.

Updated 29 Apr 2014

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VOR Press Kit

VOR's 2014 Press Kit, a collection of written materials designed to introduce VOR to the media and others, is now available. For more information, please contact Julie Huso, Executive Director at jhuso@vor.net.

Updated 29 Apr 2014

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Olmstead Resources

The Supreme Court, in its landmark Olmstead v. L.C.n decision, recognized the need for a range of services, based on individual choice and need, which respond to the varied and unique needs of the entire disability community.

Updated 29 Apr 2014

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Learn About VOR

VOR's Mission, Policy and Positions, and more. Learn more about the only national non-profit organization advocating for high quality care and human rights based on individual choice and need.

Updated 29 Apr 2014

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Developmental Disabilities" returned 115 free, full-text research articles on human participants. First 3 results:

Last Updated: 27 Mar 2014

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The habilitation nursing of children with developmental disabilities--beyond traditional nursing practices and principles?
 

Author(s): Johanna Olli, Tanja Vehkakoski, Sanna Salanterä

Journal:

 

Research-based descriptions of the contents of the habilitation nursing of children with developmental disabilities are lacking. The objective of this qualitative study was to describe the habilitation nursing of children with developmental disabilities in a Finnish children's neurological ...

Last Updated: 24 Mar 2014

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Biomarkers, behavior, and intellectual and developmental disabilities.
 

Author(s): Frank J Symons, Jane E Roberts

Journal: Am J Intellect Dev Disabil. 2013 Nov;118(6):413-5.

 

Last Updated: 17 Jan 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Developmental Disabilities" returned 14 free, full-text review articles on human participants. First 3 results:

Oral health care for children with developmental disabilities.
 

Author(s): Kenneth W Norwood, Rebecca L Slayton, ,

Journal: Pediatrics. 2013 Mar;131(3):614-9.

 

Children with developmental disabilities often have unmet complex health care needs as well as significant physical and cognitive limitations. Children with more severe conditions and from low-income families are particularly at risk with high dental needs and poor access to care. ...

Last Updated: 4 Mar 2013

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Global perspective on early diagnosis and intervention for children with developmental delays and disabilities.
 

Author(s): Alfred L Scherzer, Meera Chhagan, Shuaib Kauchali, Ezra Susser

Journal: Dev Med Child Neurol. 2012 Dec;54(12):1079-84.

 

Low- and middle-income countries are experiencing a significant reduction in mortality of children under 5 years of age. This reduction is bringing in its wake large numbers of surviving children with developmental delays and disabilities. Very little attention has been paid to these ...

Last Updated: 20 Nov 2012

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Mouse models for Down syndrome-associated developmental cognitive disabilities.
 

Author(s): Chunhong Liu, Pavel V Belichenko, Li Zhang, Dawei Fu, Alexander M Kleschevnikov, Antonio Baldini, Stylianos E Antonarakis, William C Mobley, Y Eugene Yu

Journal: Dev. Neurosci.. 2011 ;33(5):404-13.

 

Down syndrome (DS) is mainly caused by the presence of an extra copy of human chromosome 21 (Hsa21) and is a leading genetic cause for developmental cognitive disabilities in humans. The mouse is a premier model organism for DS because the regions on Hsa21 are syntenically conserved ...

Last Updated: 13 Dec 2011

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

"Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities
 

Status: Recruiting

Condition Summary: Developmental Disabilities; Autistic Spectrum Disorder

 

Last Updated: 6 Feb 2014

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Development of a New Diagnosis and Intervention Method for Developmental Disorders
 

Status: Recruiting

Condition Summary: Developmental Disabilities

 

Last Updated: 20 Jul 2011

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Predicting Developmental Disability Type and Mental Retardation Level in Children With General Developmental Delay
 

Status: Recruiting

Condition Summary: Global Developmental Delay; Cerebral Palsy; Mental Retardation; Pervasive Developmental Disorders

 

Last Updated: 1 Mar 2013

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