Desmoid Tumor

Common Name(s)

Desmoid Tumor

Desmoid tumors are benign (noncancerous) growths of the connective tissue. Although these tumors rarely spread to more distant parts of the body, they have a tendency to invade surrounding tissues and can be very difficult to remove. Signs and symptoms vary from person to person and largely depend on the size and location of the tumor; however, many affected people experience pain, numbness, and/or tingling. The cause of desmoid tumors is unknown, but they sometimes occur in people with certain conditions such as familial adenomatous polyposis (FAP). Treatment consists of surgery to remove as much of the tumor as possible. Radiation therapy, chemotherapy, and/or hormone therapy may also be used in some cases.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Desmoid Tumor" for support, advocacy or research.

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The Desmoid Tumor Research Foundation

Dedicated to funding research to find a cure for desmoid tumors

Last Updated: 19 Feb 2013

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Desmoid Tumor" for support, advocacy or research.

Logo
The Desmoid Tumor Research Foundation

Dedicated to funding research to find a cure for desmoid tumors

http://www.dtrf.org

Last Updated: 19 Feb 2013

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Desmoid Tumor" returned 46 free, full-text research articles on human participants. First 3 results:

Intra-abdominal desmoid tumor after resection for gastrointestinal stromal tumor of the small intestine: case report.
 

Author(s): Hirotoshi Kobayashi, Kenichi Sugihara

Journal: Jpn. J. Clin. Oncol.. 2014 Oct;44(10):982-5.

 

Mesenchymal tumors are thought to constitute only 1% of primary gastrointestinal malignancies. Both gastrointestinal stromal tumor and desmoid tumor are rare. The case of a 56-year-old male with a desmoid tumor 1 year after surgical removal of a gastrointestinal stromal tumor near ...

Last Updated: 2 Dec 2014

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Intra-abdominal desmoid tumor mimicking gastric cancer recurrence: a case report.
 

Author(s): Akihiko Okamura, Tsunehiro Takahashi, Yoshiro Saikawa, Shuhei Mayanagi, Kazumasa Fukuda, Rieko Nakamura, Norihito Wada, Hirofumi Kawakubo, Tai Omori, Hiroya Takeuchi, Aya Sasaki, Yuko Kitagawa

Journal:

 

Intra-abdominal desmoid tumors are rare and most often occur in patients with a history of familial adenomatous polyposis, surgery, or pregnancy. We report a case of an intra-abdominal desmoid tumor mimicking the recurrence of gastric cancer. A 57-year-old male had undergone distal ...

Last Updated: 6 Jun 2014

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Chest wall reconstruction with titanium plates after desmoid tumor resection.
 

Author(s): Fernando Luiz Westphal, Luís Carlos de Lima, José Corrêa Lima Netto, Stephany da Cunha Seelig, Katienne Frota de Lima

Journal: J Bras Pneumol. ;40(2):200-2.

 

Last Updated: 16 May 2014

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Desmoid Tumor" returned 5 free, full-text review articles on human participants. First 3 results:

Pancreatic solid cystic desmoid tumor: case report and literature review.
 

Author(s): Bin Xu, Ling-Hua Zhu, Jia-Guo Wu, Xian-Fa Wang, Erik Matro, Jun-Jun Ni

Journal: World J. Gastroenterol.. 2013 Dec;19(46):8793-8.

 

Desmoid tumors (DTs) are nonmetastatic, locally aggressive neoplasms with a high rate of postoperative recurrence. Pancreatic DTs are especially rare; only a few cases have been reported to date. This paper describes a case of a sporadic cystic DT of the pancreas managed successfully ...

Last Updated: 31 Dec 2013

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Isolated desmoid tumor of pancreatic tail with cyst formation diagnosed by beta-catenin immunostaining: a rare case report with review of literature.
 

Author(s): Ram Nawal Rao, Preeti Agarwal, Praveer Rai, Basant Kumar

Journal:

 

Isolated pancreatic desmoid tumors with cyst formation are uncommon benign mesenchymal soft tissue tumors, characterized by the dense fibroblastic proliferations with abundant extra-cellular collagen matrix. Intra-abdominal desmoid tumor usually involve the mesentery and retroperitoneum ...

Last Updated: 14 May 2013

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Postoperative retroperitoneal desmoid tumor mimics recurrent gastrointestinal stromal tumor: a case report.
 

Author(s): Liang-Yu Shih, Chang-Kuo Wei, Chih-Wen Lin, Chih-En Tseng

Journal: World J. Gastroenterol.. 2012 Nov;18(42):6172-6.

 

Desmoid tumor is a locally invasive, myofibroblastic, nonmetastatic tumor. Its pathogenesis remains unclear and it may involve genetic abnormalities, sex hormones and traumatic injury, including surgery. Postoperative intra-abdominal desmoid tumor is rare, especially in the retroperitoneum. ...

Last Updated: 16 Nov 2012

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

PAZOPANIB Efficacy and Tolerance in Desmoids Tumors
 

Status: Recruiting

Condition Summary: Progressive Desmoids Tumors

 

Last Updated: 3 Mar 2015

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18F-FES PET/CT in Imaging Patients With Desmoid Tumors
 

Status: Recruiting

Condition Summary: Deep Fibromatosis/Desmoid Tumor; Familial Adenomatous Polyposis

 

Last Updated: 2 Apr 2015

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Last Updated: 15 Apr 2015

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